In this week’s blog, we would like to introduce you to our new volunteer, Marco Gallotta. Marco joined us from Royal Holloway University London for a two-week placement which focused on the development of e-learning materials for our portal.
The past few weeks have certainly been varied for the team here at Findacure! Taryn, Mary Rose, and Rick have all been out and about raising awareness of rare diseases!
On 11th July, our Patient Group Engagement Manager, Libbie, ran a webinar entitled ‘Growing your patient community: identifying patients and groups online’.
On 21st June, Findacure hosted its peer mentoring summer meet-up at Hamilton House in London, with attendees travelling from as far afield as northern Scotland.