Our trip to RAREsummit19
On 23rd September, Rick and Mary Rose attended Cambridge Rare Disease Network’s RAREsummit at the Wellcome Genone Genome Campus in Hinxton.
Goodbye from Libbie, our outgoing Patient Group Development Manager
Rick is building a website Lots of words and exciting things in my...Show your support for the Student Voice!
Looking to raise awareness of your rare disease among medical professionals? Then look no further as we have the ideal opportunity for you.
Rare disease spotlight: EB 2020
Taking place from 19 – 23 January 2020 in London, UK, for the first time the world’s leading experts in EB research, clinical management, and the EB Community will be brought together in one place – the 2020 EB World Congress.