by Beacon Rebrand | Patient stories, Rare disease world
This week’s blog is written by Ashley Clarke. Ashley takes us back to when her dad was first diagnosed with Huntington’s Disease (HD), and reflects on her journey from daughter and carer to HD activist and lifestyle blogger. See how she’s living life in HD!
by Beacon Rebrand | Findacure events
On 23rd June, we hosted a three-day social media workshop that sought to give patient groups the experience, confidence and skills needed to fully utilise the power of social media.
by Beacon Rebrand | Findacure team, Meet the team
We’re so excited to introduce our new Marketing and Engagement Manager, Blayne Baker, who joined the Findacure team this week! Find out more about Blayne here.
by Beacon Rebrand | Rare disease worldRick is building a website Lots of words and exciting things in my...