Pitt Hopkins UK testimonial
“There has been advice about how to become a charity, how to fundraise, how to work with researchers. They think of everything!”
Wolfram Syndrome UK testimonial
“Beacon have been there helping me to connect with other Rare Disease Charity communities…”
Behçet’s UK testimonial
“Without the help of Beacon I could not have achieved what I have as chair of Behçet’s UK this past 4-years.”
FOP Friends testimonial
Beacon’s programmes, trainings, webinars, support, student voice prize, connections, and of course RareChat sessions, have all been fantastic.
Meet Russell, Trustee of the LHON Society
Russell’s son lost his sight over a matter of weeks at the age of 24 due to LHON, a rare hereditary condition.