Rebranding from Findacure to Beacon: for rare diseases
Our year in review
We’re thrilled to say that we have either matched or exceeded the majority of our targets for 2022. Check out a few of our proudest outcomes!
100% of patient groups have progressed on our mentoring programme in the final year of our community fund grant with 75% of patient groups having achieved significant progress!
98% of patient groups agreed that our workshops and webinars were worthwhile to attend with 96% saying that they would want to attend future ones!
Don’t just take our word for it! See what our beneficiaries had to say:
Return of face-to-face events
At our first in-person workshop since 2020, 88% of attendees agreed that the chance to meet other patient advocates face-to-face was beneficial with 81% saying that our return to face-to-face training was well-timed!
What a phenomenal return to in-person events!
Launch of The Resources Hub
We wanted to produce a new learning platform on WordPress that would be more engaging, user-friendly and accessible. It was no small task, but we officially launched the Resources Hub and saw 68 signups from patient group leaders, with 50 of those signups coming in the first month of release!
What is the Resources Hub?
• Drug Repurposing
• Supporting Community
• Patient Group Development
• Research & Drug Development
REMEDi4ALL transforms our reach and impact
• Meet Faith
• Meet Eve
• Meet Will
• Meet Chloe (Intro blog coming soon!)
Our 10th birthday timeline
From starting out as Findacure in 2012 to evolving to Beacon in 2022, our charity has grown, changed and adapted to match each passing year. We’ve welcomed countless new collaborations and hosted an abundance of new trainings and events to support the patient groups who look up to us for advice, guidance and support.
Before we look ahead to 2023, take a moment to reflect on how far our charity has come. Revisit our milestones and achievements from the last decade by viewing our 10th birthday timeline and prepare to help us empower more rare disease patients in 2023 and beyond!