Rare disease patients deserve health equity and inclusion, but sadly don’t always receive it. No two patients or families have the same perspective on a rare diagnosis. We all come from different backgrounds and bring our lived experiences to the table. Our ethnicity, race, gender, religion and socioeconomic status all influence our views and beliefs.
At Beacon, we recognise that health inequalities are prevalent throughout the UK. The rare disease patient group community lacks diversity and representation. We are continually working to better understand this disparity so that we can address and change it. We firmly believe that no one should face their rare journey alone. That stands true for everyone regardless of race, religion, gender, socioeconomic background or sexual orientation. We see you and hear you.
We are committed to making a difference for every member of the rare disease community. We are always learning and recognise that more needs to be done to bring about lasting change. If you have ideas on how we can make our work more inclusive, please get in touch. We are always open to suggestions.