Thank you for visiting our press information page!

We welcome media requests that help us to reach new audiences and further our work. We’ve provided a variety of press resources below to make finding the information you need to craft an engaging story quick and hassle-free.

Our team has written articles for major rare disease campaigns featured in The Guardian, New Scientist, The Times as well as numerous digital and local outlets. You can read through a selection of our articles on our published work page.

We can provide assets, high-resolution photos, headshots and interviews upon request. We are happy to discuss rare disease developments, drug repurposing, patient group advocacy and engagement, and much much more.

Simply email our CEO, Dr Rick Thompson at and our Communications Officer Niamh Antrobus at to ask.

They’ll be more than happy to assist you!

An article from The Cambridge Independent covering Beacon's win of the Cows about Cambridge 'design a mini-moo' competition.