Who we help
Beacon’s primary beneficiary is patient groups. Our charity upskills rare disease patient groups through trainings, guided programmes, community projects and research initiatives. We help these groups maximise their impact and deliver change for the world’s often neglected patients.
We pride ourselves on signposting patient group representatives, those affected by a rare condition, researchers, healthcare professionals and pharmaceutical representatives to the most appropriate places for support. If we cannot be of help, then we’ll connect you with those who can be of assistance within the rare community.
Click on the link which best describes you below to view our list of internal and external resources that are tailored specifically to you and your needs.