MdDS Information and Help testimonial
“Beacon, was my metaphorical lighthouse in a stormy sea when I started advocating for people with Mal de Debarquement Syndrome in the UK”
Pitt Hopkins UK testimonial
“There has been advice about how to become a charity, how to fundraise, how to work with researchers. They think of everything!”
Wolfram Syndrome UK testimonial
“Beacon have been there helping me to connect with other Rare Disease Charity communities…”
Behçet’s UK testimonial
“Without the help of Beacon I could not have achieved what I have as chair of Behçet’s UK this past 4-years.”
FOP Friends testimonial
Beacon’s programmes, trainings, webinars, support, student voice prize, connections, and of course RareChat sessions, have all been fantastic.