We’re so excited to introduce our new Administrative Officer, Will who joined the Beacon team this October! Get to know one of the newest member of our team and email him at will@rarebeacon.org to say hello.
Relive Drug Repurposing for Rare Diseases! Our drug repurposing conference highlighted the repurposing of drugs across the UK and Europe. View photos and recordings now!
Beacon for rare diseases turned 10 on 7 November 2022! Three of our oldest Beacon team members share their favourite moment from the decade. Read now!
We’re so excited to introduce our new Senior Scientific Officer, Eve who joined the Beacon team this October! Get to know the newest member of our team and email her at eve@rarebeacon.org to say hello.
This week’s blog is written by Rhys Holmes, who you may know from Drug Repurposing for Rare Diseases 2022! Rhys was diagnosed with the rare neurodegenerative disease superficial siderosis. He joined us at #DrugRepo22 to share his rare journey about losing his hearing and how an off-label drug, deferiprone, has improved his quality of life. Rhys summarises his experience at our Drug Repurposing for Rare Diseases conference!