Meet Emma, our new Fundraising Manager!

Oct 11, 2023

We’re so excited to introduce Emma our new Fundraising Manager!

Get to know one of the newest members of our team and email her at to say hello.

Welcome to the rare family, Emma!

What were you doing before you joined Beacon?

I have spent most of my career working in the charity sector; starting in the arts and then higher education, before working for the Tuberous Sclerosis Association and Genetic Alliance UK. All my roles have involved fundraising, communications and engagement, and I’ve worked from junior to senior management level.

After having my first son I moved to Germany and took up a post in an international agricultural biotech company. It was fun to switch it up and work for a big business, but after 3 years in Germany it was time to head back to the UK.

I am now living in Sheffield with my two young sons and very happy to be working in rare diseases again.

Niamh pictured in Norway with her boyfriend.

Why did you choose to join the Beacon team?

Picture of Niamh in London with her best friend.

In my role at the patient organisation the Tuberous Sclerosis Association and Genetic Alliance UK I had a lot of contact with Beacon, known then as Findacure.

I was always impressed with the charity and how this small, dedicated team managed such a large and ambitious output.

When I found out that they were looking for Fundraising Manager just as I was looking for a new role – I could not believe my luck!

I think the charity has all the skills and drive to really grow over the coming years and I am very excited to be a part of that.

What do you want to achieve most at Beacon?

I’d love to be able to support the charity to grow long term funding partnerships and multiyear sustainable income.

There is also the opportunity to help shape the future strategy in both fundraising and communications and I hope to bring some of my experience here to enhance both areas.

Niamh in Cornwall with her sister and boyfriend

What are your hobbies outside of work?

Niamh is with Harry Styles at BBC Radio 2.

As most parents of young children know, life tends to be a little dominated by their hobbies rather than your own.

But we’re a very active and loud household – there’s lots of camping, hiking, biking, yoga, music, pillow fights, swimming and living room discos.


What’s your favourite book/film/TV show and why?

My favourite book is The Gargoyle by Andrew Davidson. It is like nothing I have ever read and touches on themes of mysticism, history, love, suspense, and personal transformation.

I rarely watch TV – but enjoy visually beautiful and interesting films. This can include anything from movies like The Lighthouse or Inception, through to Natural Born Killers and Blade Runner.

And that’s a wrap!

We hope you enjoyed getting to know a little more about one of our newest Beaconites, Emma.

Remember to email her to say hello and join us in welcoming Emma to the rare family!

Niamh pictured in Cornwall with her family.

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