Three years weren’t long enough with you, Phil!
Our Project Manager, Philippa (Phil) has officially left Beacon to pursue her next chapter: teaching English abroad! Read Phil’s leaving blog now and wish her well on her adventures!
My rare journey with Hao Fountain Syndrome
Meet Cailin, who lives with Hao Fountain Syndrome. Cailin shares her rare journey to help others like her not feel alone. Read her blog!
Why join Beacon?
Apply for our charity vacancies! See why the Beacon for rare diseases team loves working at our charity and apply to join us by 9am on the 19th April. Good luck!
Looking back: 1 year on since rebranding from Findacure to Beacon for rare diseases
Our rare diseases charity in Cambridge, UK rebranded from Findacure to Beacon for rare diseases over a year ago. View the impact of our rebrand!
My Inclusion Body Myositis
John Muller, Founder of GettingUp.org shares his personal experience of being diagnosed with inclusion body myositis for this week’s blog. Read his story!
We coordinated our appearances in the lead-up to Rare Disease Day!
The Beacon team has been all over the country in celebration of Rare Disease Day. Join us as we look back at this year’s Rare Disease Day celebrations and see what we thought of each event!