Discover the Shine a Light on XLH Virtual Exhibition to see how Kyowa Kirin is raising awareness of the impact X-linked Hypophosphataemia (XLH) can have on all aspects of one’s life. Learn more and view the exhibition!
Last week, the Beacon team headed out to paint the town red and get drunk on knowledge at Pint of Science. Read our summary of what we learned!
Wife sets out to complete her late husband’s film project on children with acute flaccid myelitis (AFM)
Sarah Potter has set out to complete her late husband Scott’s film project on children living with the rare disease, Acute Flaccid Myelitis (AFM). Read her story now and get ready to see this film. She and the team reached their fundraising target!
We hope that you enjoyed Part 1 of our Rare Disease Day blog series! Part 2 will highlight our last set of rare conditions and accompanying patient groups to help raise awareness and support. Our final blog (Part 2) discusses:
Duchenne Muscular Dystrophy (DMD)
Guillain-Barré Syndrome (GBS)
Tuberous Sclerosis Complex
Tyrosinemia Type 1