Loading Events

« All Events

  • This event has passed.

In-person workshop | Demonstrating impact: the key to a successful rare disease patient group

13th July, 2022 at 10:00 am - 4:30 pm BST

Wednesday 13th July from 10 am – 4:30 pm BST at The Royal College of Surgeons in London

Beacon is delighted to announce the first in-person workshop since 2020 – Demonstrating impact: the key to a successful rare disease patient group.

As a patient group, your impact is the difference you make to your community, whether that’s helping newly diagnosed patients, raising awareness, driving research or whatever your goals may be.

Why is impact so important to patient group success?

Being able to understand and demonstrate your impact is the key to your patient group’s success.

Impact measurement allows you to improve the work you are doing as you understand what is and isn’t working and therefore, can better serve your community. It also provides you with credible data which you can use to prove your worth to potential funders and donors.

If you don’t know where to start with impact measurement, join this in-person workshop to learn from an expert trainer and come away with a measurement strategy you can apply to all your projects.

What will I gain from attending this workshop?

  • An understanding of why impact measurement is vital to your organisation and how to implement it
  • Knowledge of the vocabulary and theory of social impact
  • An understanding of the difference between impact measurement, impact management and monitoring and reporting
  • A practical impact action plan that you have developed during the day
  • The rare opportunity to connect, learn from and interact with fellow members of the rare disease community in-person for the first time in two years!

Frequently asked questions:

Beacon workshops are free for all to attend, we completely cover the cost of the expert trainer, venue and catering.

If attendees were paying for themselves this event would cost each individual £500 – so it’s definitely worth attending!


The workshop will be held at The View in the Royal College of Surgeons in London. This is our first in-person workshop since 2020!

Address: The View, 38-43 Lincoln’s Inn Fields, London, WC2A 3PE


Beacon will reimburse travel expenses for rare disease patients, carers, patient groups and charities, up to the total value of £75.00 per person. If your travel is likely to exceed this amount, please contact projects@rarebeacon.org ahead of the event so we can discuss whether further reimbursement will be possible.

All expenses, other than mileage, must be accompanied by valid receipts.  

For further information on our expenses policy, please click here


As spaces are limited, we kindly request that you only sign up for an event if you are confident you will be able to attend. If you have already registered and find yourself unable to make it, please contact projects@rarebeacon.org so we can release your ticket. 



13th July, 2022
10:00 am - 4:30 pm BST
Event Category:




Type of Event


The View in The Royal College of Surgeons of England
38-43 Lincoln's Inn Fields
London, WC2A 3PE United Kingdom
+ Google Map
View Venue Website