Join us in London to learn how to harness the power of social media to help your patient group achieve its advocacy goals!
Social media is a powerful and accessible tool for patient group leaders to tap into.
It provides ample opportunities to assist groups in achieving their advocacy goals. It serves as a platform for fundraising, sharing knowledge and experiences, raising awareness about rare conditions, connecting with patients and families worldwide, and discovering new patients.
Navigating this digital landscape, however, comes with its challenges. With the ever-changing nature of social media, it’s often difficult to determine where to direct your efforts so you can have the most significant impact.
Join us for this in-person masterclass where we’ll explore strategies to effectively utilise social media for rare disease advocacy. Together, we’ll empower you to navigate these platforms with confidence, ensuring that your efforts yield meaningful results.
Is this masterclass for me?
Our social media training is designed as an introductory course tailored specifically for individuals who do not come from a communications or social media background.
If you’re a beginner who is eager to learn the ropes or you’re looking for tips on how to maximise your social media impact, this in-person masterclass is perfect for you.
What to expect from the masterclass?
This in-person masterclass will be an interactive session with plenty of opportunities to interact with the trainer and your fellow rare leaders.
We will cover:
Refining your messaging and choosing your platforms
- The importance of setting goals for your social media and how to do this
- An overview of the major social media platforms and who uses them
- The types of content that work best on each platform
- How to tailor your messaging to fit the platform
Creating engaging content
- Tips on how to create engaging content
- Examples of people who are using social media well and what we can learn from them
- Using canva to create content – with live demonstrations and activities!
How to get the most out of social media
- Demonstrations of different time-saving tools and how to use them
- How to use analytics to measure your social media impact
- Tips on how to boost engagement
Meet the trainers
Sue Keogh, Director
Olha Havrina, Digital Marketing Executive
This in-person masterclass will be led by social media experts Sookio.
Sookio are a strategic digital marketing agency that helps ambitious and transformative organisations communicate their ideas to the world through brilliant digital strategy, content and campaigns.
You don’t want to miss this opportunity to improve your social media skills and to interact with fellow patient group leaders!
Tickets are limited, so claim yours now so you don’t miss out!
Deposit scheme
Registering for this in-person masterclass will require paying a refundable deposit of £30 upon registration. This deposit will be kept safe in Eventbrite until after the training has been completed.
Following the event, if you have attended and signed in, you will get your full deposit back.
We understand that circumstances can change, especially in the rare disease community. Should you register for the event and realise you can no longer attend, please let us know as soon as possible.
We will endeavour to refund your deposit in full provided reasonable notice is given. Reasonable notice for this event is no later than 7 working days before.
Find out more about our deposit scheme here. If you have any questions, please contact projects@rarebeacon.org.
Frequently asked questions
Do you cover travel expenses?
Beacon will reimburse travel expenses for rare disease patients, carers, patient groups and charities, up to the total value of £75.00 per person. If your travel is likely to exceed this amount, please contact projects@rarebeacon.org ahead of the event so we can discuss whether further reimbursement will be possible.
All expenses, other than mileage, must be accompanied by valid receipts.
For further information on our expenses policy, please click here.
Where is the masterclass?
20 Cavendish Square, London W1G 0RN
Closest underground stations:
- Oxford Circus Station – 3 mins walk (Central Line, Bakerloo Line, Victoria Line)
- Bond Street Station – 3 mins walk (Elizabeth Line, Jubilee Line, Central Line)
- Great Portland Street Station – 13 mins (Circle Line, Hammersmith & City Line, Metropolitan Line)
Is the venue accessible?
The venue has step-free access via a lift and/or ramp and accessible toilets onsite.
If you have any accessibility requirements, please note these on your registration form so we can ensure that your needs are met.
To discuss any additional accessibility measures we can provide, please get in touch with our team at projects@rarebeacon.org.
Will lunch be provided?
Lunch and refreshments will be provided throughout the day.
If you have dietary requirements, please let us know in the registration form.
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