BEGIN:VCALENDAR VERSION:2.0 PRODID:-//Beacon for rare diseases - ECPv6.10.3//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:Beacon for rare diseases X-ORIGINAL-URL:https://www.rarebeacon.org X-WR-CALDESC:Events for Beacon for rare diseases REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/Paris BEGIN:DAYLIGHT TZOFFSETFROM:+0100 TZOFFSETTO:+0200 TZNAME:CEST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0200 TZOFFSETTO:+0100 TZNAME:CET DTSTART:20261025T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/Paris:20260326T100000 DTEND;TZID=Europe/Paris:20260326T160000 DTSTAMP:20260316T123809 CREATED:20260210T153022Z LAST-MODIFIED:20260223T113935Z UID:63270-1774519200-1774540800@www.rarebeacon.org SUMMARY:Inspire action through storytelling DESCRIPTION:A powerful story can open doors…\nto funding\, partnerships and influence!\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n We’re delighted to invite rare disease patient group leaders to join us in London for a masterclass on storytelling. \nYou will learn how to create clear\, impactful narratives that support your goals and resonate with decision-makers. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Rare disease patient groups are built on powerful stories\, but knowing how to tell them well is what makes them effective.\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Why attend this masterclass\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Every person touched by a rare disease has a story\, whether that is of living with a condition\, caring for someone\, or navigating the healthcare system. These stories sit at the heart of rare disease patient groups and form the foundation of everything they do.\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Knowing how to tell your story well can make a huge difference.\nIt could:\n\nBe the difference between a grant application that blends in and one that stands out\nAttract partners\, policymakers\, or researchers to your mission\nUnderpin a successful social media campaign or awareness day\nForm a core part of your impact report\n\n \n \n \n \n \n This masterclass will cover:\n\nThe theory of storytelling\, why it’s so powerful and how it can influence decisions\nHow to tailor your narrative for different audiences and goals\nHow to put yourself in the shoes of the people whose minds you want to change\, and influence them!\n\nYou’ll come away from the day with your own story-based action plan which you can use straight away!\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Get your ticket here!\n \n Register\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Meet the trainer!\n \n \n \n \n \n Dave has been a professional writer for almost 15 years and spent nearly a decade in the healthcare industry. \nDave is a qualified marketeer and agency leader\, with a deep interest in stories. He’s completed hundreds of medical communications projects and training courses\, across many therapy areas\, with a focus on rare disease. \nHe’s also written and self-published two books in his own Rare Disease Club series. He’s passionate about helping others build storytelling skills and influence meaningful change.\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Dave Taylor-Langdale\nManaging Director\nWord Monster Agency\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Frequently asked questions\n \n \n \n \n \n Can I bring a carer with me?\n Yes\, any registered delegate is able to bring a carer with them to our training. If you’d like a carer to attend with you\, please choose the free carer ticket in addition to your own during registration.\n \n \n \n \n \n Do you cover travel expenses?\n Beacon will reimburse travel expenses for rare disease patients\, carers\, patient groups and charities\, up to the total value of £100 per person. If your travel is likely to exceed this amount\, please contact projects@rarebeacon.org ahead of the event so we can discuss whether further reimbursement will be possible. \nAll expenses\, other than mileage\, must be accompanied by valid receipts.   \nFor further information on our expenses policy\, please click here.  \n \n \n \n \n \n Where is the workshop? \n 20 Cavendish Square\, London W1G 0RN \nClosest underground stations: \n\nOxford Circus Station – 3 minute walk (Central Line\, Bakerloo Line\, Victoria Line)\nBond Street Station – 3 minute walk (Elizabeth Line\, Jubilee Line\, Central Line)\nGreat Portland Street Station – 13 minute walk (Circle Line\, Hammersmith & City Line\, Metropolitan Line)\n\n \n \n \n \n \n Is the venue accessible?\n The venue has step-free access via a lift and/or ramp and accessible toilets onsite. \nIf you have any accessibility requirements\, please note these on your registration form so we can ensure that your needs are met. \nTo discuss any additional accessibility measures we can provide\, please get in touch with our team at projects@rarebeacon.org. \n \n \n \n \n \n Will lunch be provided?\n Lunch and refreshments will be provided throughout the day. \nIf you have dietary requirements\, please let us know in the registration form. \n \n \n \n \n \n Do I have to pay a deposit?\n Yes. Registering for this in-person masterclass will require paying a refundable deposit of £30 upon registration. This deposit will be kept safe in Eventbrite until after the training has been completed. \nFollowing the event\, if you have attended and signed in\, you will get your full deposit back. \nWe understand that circumstances can change\, especially in the rare disease community. Should you register for the event and realise you can no longer attend\, please let us know as soon as possible. \nWe will endeavour to refund your deposit in full provided reasonable notice is given. Reasonable notice for this event is no later than 7 working days before. \nFind out more about our deposit scheme here. If you have any questions\, please contact projects@rarebeacon.org. \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Please note: the ticket window may take a few seconds to load.  URL:https://www.rarebeacon.org/event/storytelling/ LOCATION:20 Cavendish Square\, London CATEGORIES:In-person,Masterclass ATTACH;FMTTYPE=image/jpeg:https://www.rarebeacon.org/wp-content/uploads/2026/02/Storytelling-Main-graphic.jpg ORGANIZER;CN="Beacon for Rare Diseases":MAILTO:projects@rarebeacon.org END:VEVENT END:VCALENDAR