Webinar series announced! Developing your rare disease patient group from the bottom upBeacon is delighted to announce our next webinar series, this series will consist of three webinars over the next three months (May - July) looking at how rare disease patient groups can attract and retain the right people to ensure their organisation's success […]
Next RareChat announced: Experiences of collaborating with industry! Collaboration between patient groups and industry is critical to be able to drive research into your rare condition, develop treatments and gather data. However, navigating these partnerships, whether it be with pharmaceutical companies, CROs or other industry representatives, can be complicated and overwhelming. In this RareChat, we […]
Developing your rare disease patient group from the bottom up - you can now sign up for the second webinar in the series!This series will look at how rare disease patient groups can attract and retain the right people to ensure their organisation's success and longevity. The series kicks off on the 26th of May […]
After three years, we are delighted to announce the return of our long-awaited Cambridge Rare Disease Showcase; our first in-person event since 2020! The Rare Disease Showcase is an event series that celebrates the innovative rare disease projects taking place across the UK and wider world.
Wednesday 13th July from 10 am - 4:30 pm BST at The Royal College of Surgeons in LondonBeacon is delighted to announce the first in-person workshop since 2020 - Demonstrating impact: the key to a successful rare disease patient group. As a patient group, your impact is the difference you make to your community, whether […]
We are excited to announce that we are running a brand new Masterclass series on creating video content at your fingertips!
Leading a rare disease community is unique in its demands, and can be both rewarding and demanding. Whether you are a sole worker or part of a team, come and discuss with other rare disease advocates the challenges of juggling your own psychological wellbeing with that of your community. Join us to discuss: • The […]
Developing your rare disease patient group from the bottom up - you can now sign up for the third webinar in the series!This series will look at how rare disease patient groups can attract and retain the right people to ensure their organisation's success and longevity. It kicked off back in May with a session […]
In-person workshop: Building positive partnerships between patient groups and industry 10:00 - 16:00, 21st September 2022, The Royal Institution, LondonWe are delighted to announce our next in-person workshop focusing on how to build positive and equitable partnerships between patient groups and the life sciences industryCollaborating with the pharmaceutical industry is often a key aim for […]
Our annual conference, Drug Repurposing for Rare Diseases, highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. Our conference sparks cross-sector conversation, uniting the expertise of diverse groups to inspire meaningful, patient-centred drug repurposing research for rare diseases.