3rd November, 2022 at 11:00 am - 1st December, 2022 at 1:00 pm GMT Online Workshop: Building rare resilience Online at Zoom During this workshop, we will hear practical tools and strategies to look after your own wellbeing as a rare leader, manage expectations, avoid burnout and deal with the distress of others.
14th December, 2022 at 10:00 am - 11:30 am GMT RareChat | The cost of living crisis and its effect on charities Online at Zoom Join our RareChat on the 14th of December to discuss the cost of living crisis and the effect it's having on patient groups
26th January at 10:00 am - 11:30 am GMT RareChat | Genetics, genomics and advanced therapies Online at Zoom
23rd February at 11:00 am - 12:30 pm GMT Navigating the cost of living crisis as a patient group Online at Zoom
28th February at 7:00 pm - 8:30 pm GMT Beyond the Student Voice Prize: exploring opportunities in rare diseases Online at Zoom
27th March at 10:30 am - 29th March at 12:30 pm BST Online workshop: Formalising your patient group as a charity Online at Zoom
10th May at 11:00 am - 12:30 pm BST Webinar: Success stories of advanced therapies in rare diseases Online at Zoom
7th June at 11:00 am - 12:30 pm BST Webinar: Managing expectations of advanced therapies Online at Zoom