The Student Voice Prize: Rare Disease day event!

Online at Zoom

The Student Voice Prize: Exclusive rare disease day event!The Student Voice Prize is delighted to invite you to our virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and patient group leaders to learn more about the rare community and how you can get further involved. The event […]

Online workshop: Sustaining engagement from your patient community

Online at Zoom

Online Workshop: Sustaining engagement from your patient communityBeacon is delighted to announce its next online workshop: Sustaining engagement from your patient community.  In the rare disease community, the challenges don’t end once the mammoth task of finding patients and families has got underway. It can be equally challenging to keep families, individuals and community members […]

RareChat | Succession planning: how to know when it’s your time to go

Online at Zoom

Beacon is excited to announce our next RareChat - Succession planning: how to know when it's your time to goThere will come to a point in all organisation's lifetimes when the leader is ready to step down. For the founder or CEO, it can be difficult to know when that should be and how to […]

Online workshop: Understanding access and reimbursement

Online at Zoom

Beacon is delighted to announce its next online workshop: Understanding access and reimbursement Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research into and treatments for their rare conditions. However, understanding how to secure […]