The Student Voice Prize: Exclusive rare disease day event!The Student Voice Prize is delighted to invite you to our virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and patient group leaders to learn more about the rare community and how you can get further involved. The event […]
Wednesday 9th March at 2 pm - 3:30 pm GMT
Join this webinar to explore the ways in which patient organisations can increase their visibility both online and in-person
Online Workshop: Sustaining engagement from your patient communityBeacon is delighted to announce its next online workshop: Sustaining engagement from your patient community. In the rare disease community, the challenges don’t end once the mammoth task of finding patients and families has got underway. It can be equally challenging to keep families, individuals and community members […]
Beacon is excited to announce our next RareChat - Succession planning: how to know when it's your time to goThere will come to a point in all organisation's lifetimes when the leader is ready to step down. For the founder or CEO, it can be difficult to know when that should be and how to […]