Events and Projects Officer
Overview of the role
Beacon is seeking an entry-level Events and Projects Officer to join our established Projects Team and support us through the next stage in our charity’s development.
The Projects Team is central to our work at Beacon, responsible for delivering the charity’s core patient group training and community building activities. Comprising of the Chief Operating Officer, the Projects Manager, the Digital Resources Manager, and the new Events and Projects Officer, they oversee everything from patient group training events, support programmes, e-learning resources, conferences, networking events and more.
The Events and Projects Officer role is a varied one, with no two days the same. In this position, you can expect to play a hand in project/event support, co-ordination, and delivery across the organisation; with frequent chances to collaborate with colleagues, external-partners, and beneficiaries in the rare disease community.
This role is a great opportunity for anyone looking to explore different aspects of charity work and develop their skillset in multiple areas. As an entry-level role, you will benefit from working closely with our entire Projects Team and their combined 15 years of experience in project management at Beacon.
The successful candidate will be a proactive and strong team player, with good communication skills and confident working independently. You will have good organisational and problem-solving abilities and be experienced with keeping on top of multiple tasks.
You will begin your career with us by observing and learning from our experienced Projects Team, whilst supporting in project delivery. As you develop your skills and confidence, you’ll take on more responsibilities, have the chance to define your role in projects and eventually lead in specific areas.
- Assisting the planning and delivery of online and in-person training events, programmes, conferences, and networking events.
- Coordinating logistics for events and projects including attendee registration, website creation, virtual event set up, venue and catering booking, and speaker management.
- Preparing pre- and post-event materials such as promotional materials, agendas, presentations, videos and educational resources.
- Liaising with collaborators, beneficiaries, sponsors, and external partners to ensure smooth project and event delivery.
- Conducting research to support project planning and decision making.
- Supporting in the collection, recording and reporting of feedback and impact data.
- Serving as the point of contact for queries related to events and projects, providing timely and accurate information.
- Assisting with on-site event coordination and management, including setup, registration, attendee assistance, and troubleshooting.
- Contributing to the update and maintenance of Beacon’s patient group database to monitor short- and long-term engagement with our work.
In line with the nature of small team working, additional responsibilities and duties may be added on an ad-hoc or long-term basis according to the needs of the organisation and interest of the successful applicant.
This is an entry-level role, suitable for someone looking to develop skills and gain experience in project and event management in a non-profit environment.
- Strong organisational and time-management abilities, adept at prioritisation and multitasking.
- A proactive attitude with good initiative and a focus on impactful project outcomes.
- Attention to detail with a drive to achieve and maintain high standards.
- Dedicated to providing exceptional experiences for those in our events and projects.
- Proficient in written and verbal communication, capable of engaging diverse audiences.
- Skilled in building and nurturing strong working relationships with various stakeholders.
- Drive, determination, and self-motivation, with a positive attitude towards work.
- Excellent interpersonal skills, comfortable in team settings and independent working.
- Computer literate and confident using all MS Office software.
- Understanding of, and commitment to, the objectives of Beacon.
- Ability to deliver occasional out-of-hours work to accommodate Beacon events or travel in the UK and internationally.
- Experience presenting in front of an audience.
- Experience in organising events or projects.
- Experience using Photoshop and/or Premiere Elements.
- Experience working or volunteering with charities.
- An understanding of rare diseases and/or the UK healthcare system.
- Scientific or medical understanding.
Beacon (formerly known as Findacure) is a UK-based charity that is building a united rare disease community with patient support groups at its heart.
Our vision: a world in which no one faces their rare journey alone.
Rare diseases affect around 3.5 million (that’s 1 in 17) of the UK population, and globally affect more people than cancer and AIDS combined. Misdiagnosis, delayed treatment, inadequate care coordination, and lack of support are common challenges faced by rare disease patients. Living with such conditions – frequently chronic, life-limiting and life threatening – can be profoundly isolating, affecting not only patients but also their families.
Patient groups play a pivotal role in breaking this isolation. They offer an invaluable service to their community, supporting them in their darkest hours and advocating for better research, treatment, and care. However, establishing and manging a patient group can be an overwhelming experience, with most led – voluntarily – by those directly affected by a rare disease.
Beacon tackles this challenge head-on. Through a variety of activities – including patient group trainings (on topics ranging from fundraising to clinical trials), community projects and research initiatives – we equip patient groups with the tools, confidence, and connections needed to deliver change for the world’s often neglected rare disease patients.
Thanks to funding from the National Lottery and UKRI, we have grown from a team of six to eleven in under 18 months. As we navigate our second decade of operation, we find ourselves in an exciting stage of our journey; embarking on new, ambitious, and international projects and transforming our approach to existing ones.