Keep up to date with Beacon


If you want to stay up-to-date with the latest Beacon news, you’ve come to the right place! There are plenty of ways to get involved in our mission and support our cause. Help us to build a united rare disease community with patient groups at its heart by attending an event, sharing your story on our blog, subscribing to our newsletter or connecting with us on social media. We’re easy to reach and even easier to engage with!


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Beacon news


Catch every event announcement, project update or open recruitment call by following our charity news! We make it easy to follow our announcements and rare disease news all in one place.

Attend upcoming events


There’s always something happening at Beacon. Our free patient group trainings provide the guidance needed to form, grow and professionalise as a group. Register for an event today to connect with those in the rare disease space.

Read our rare disease blog


Each week we put our fingertips to the keyboard to bring you a blog post written by us or a member of the rare disease community. You will find guest articles written by rare patients, carers, families and advocates who wish to share their lived experiences to help others. The Beacon team also shares opinion pieces, event recaps and team news to keep you up-to-date on what we’ve been doing behind the scenes.

Tell your story on our blog


If you enjoy guest blogging, consider sharing your story with us. By telling your personal story on our blog, you will help to break the isolation felt by others living with a rare disease who want to be seen and heard. Although rare diseases differ in symptoms, cause and impact, the challenges they present are universal. Sharing your life experience and success story will empower so many others across the globe. Your story will ensure that no one faces their rare journey alone.

Ready to tell your rare disease story on our blog?

Sign up for our newsletter


If you’re not first, you’re last! Subscribe to our newsletter to be amongst the first to hear about our upcoming events and projects. Our Community Mailing list gives you first access to newly released tickets as soon as they are announced.