Our Blog

 

Welcome to the Beacon blog!

We produce a weekly blog to share what we have been up to alongside the rare community.

 

Our Blog

 

Welcome to the Beacon blog!

We produce a weekly blog to share what we have been up to alongside the rare community.

 

Our blog is published every Friday and varies in topic and voice. You’ll often find our team celebrating a work anniversary, welcoming a new team member, thanking our sponsors or writing an event recap on our blog. We thoroughly enjoy writing opinion pieces and summarising the reports that matter most to the rare community.

Our blog doesn’t just exist for us – it exists for you! We welcome guest blog posts from the community to help break the isolation felt by those living with rare disease. If you want to share your lived experiences to help others, visit our Share your story page to learn how to write for our blog.

We hope that you enjoy reading stories from us and the rare disease community!

Please note: We were previously known as Findacure before rebranding as Beacon in 2022.

 

Farewell and thank you to our graphic design intern, Freya!

Farewell and thank you to our graphic design intern, Freya!

This week’s blog was written by our Graphic Design intern, Freya, who helped to rebrand our rare disease charity as Beacon! Freya led the way on our rebrand, designing our new website and setting our brand direction (logo, colour scheme, typography and overall concept). Join us as we say farewell and thank you to Freya!

People with #DuchenneCAN…Find out more!

People with #DuchenneCAN…Find out more!

In the lead-up to Rare Disease Day, we were thinking about the strong and positive people who don’t let their disease define them. And so, this week’s blog is inspired by boys and young men with Duchenne muscular dystrophy who are defying the odds and realising their...

Rare Disease Day blog series Part 2: Conditions, stats and patient groups

Rare Disease Day blog series Part 2: Conditions, stats and patient groups

We hope that you enjoyed Part 1 of our Rare Disease Day blog series! Part 2 will highlight our last set of rare conditions and accompanying patient groups to help raise awareness and support. Our final blog (Part 2) discusses:

Duchenne Muscular Dystrophy (DMD)
Guillain-Barré Syndrome (GBS)
Achondroplasia
Vascular EDS
Tuberous Sclerosis Complex
Tyrosinemia Type 1

Meet our new Fundraising Officer, Sophia!

Meet our new Fundraising Officer, Sophia!

For this week’s blog, we want to introduce you to our new Fundraising Officer, Sophia! Get to know Sophia and do say hello!What were you doing before you joined Findacure? Last year, I worked in Senegal for Ashinaga, an international educational organisation. As a...