News
View all the news that’s fit to print!
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
News
View all the news that’s fit to print!
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
If you’d like to be amongst the first to know about our event announcements and project updates, subscribe to our newsletter. Our Community Mailing List gives you first access to newly released tickets and keeps you connected with our charity news. Subscribe today!
Please note: We were previously known as Findacure before rebranding as Beacon in 2022.
We’re hiring for a new Projects Officer for our Scientific team!
Our rare diseases charity is looking to hire a new Projects Officer to join our science team! View our open science charity job now and apply!
Farewell to our Scientific Projects Officer
It is with great sadness that we must inform you that our Scientific Projects Officer, Chloe, has left the organisation. Learn more.
Rarely Heard named Top 25 UK Disease Podcasts on the web!
We're thrilled to announce that The Rarely Heard Podcast has been named one of Feedspot's Top 25 UK Disease Podcasts on the web! The Rarely Heard Podcast was chosen after analyzing thousands of podcasts on the web and ranking them by traffic, social media followers...
Say hello to our new Digital Resources Manager!
Our current Marketing and Engagement Manager, Blayne, will transition roles to become our new Digital Resources Manager. Learn more!
We’re hiring!
Our rare diseases charity in Cambridge, UK is hiring for a new Projects Officer and new Communications Officer. View our charity jobs!
Farewell and good luck to our beloved Phil!
Our Senior Projects Officer, Philippa is leaving our rare diseases charity in May after three and half wonderful years. Read the announcement.
NEW Season 2 ‘Talking in Tandem’ guest illustrations!
View Maryna Kolochavina’s podcast illustrations! She kindly produced these illustrations for the Rarely Heard podcast on a voluntary basis.
We’re published in the Rare Disease Day Campaign 2023!
Our CEO and Marketing & Engagement Manager are published in MediaPlanet UK’s Rare Disease Day campaign! They share how the rare community is working to repurpose drugs. Read now!
This is Rare: The voice of the rare community
Our Senior Projects Officer, Philippa joined This is Rare, a Sanofi UK-sponsored campaign that puts the voices of the rare disease community centre stage. She and the rare community attended Abbey Road Studios to share the rare experience through music and song. Watch This is Rare performance!
Our friend is running the GEAR 10K in King’s Lynn for Beacon!
Our friend, Juliet is running the GEAR 10K in King’s Lynn (also known as the Grand East Anglia Run) in support of our rare diseases charity! She’s fundraising to support our patient group training and events. Learn more!
Apply to be a mentee or mentor on our Mentoring Programme!
We’re delighted to announce the return of the Patient Group Mentoring Programme for the seventh time!
See why you should apply to become a mentee or mentor on this year’s programme and check out what’s new for 2023!
Apply by 20th Feb!
The 2022 Student Voice Prize winners are announced!
The 2022 winners of The Student Voice Prize are here! This year’s winners were paired with Behcet’s UK, Unique Charity and the VEDS Movement. Read excerpts from the winning essays now and view the full essays when they’re published on Rare Disease Day!
We’re speaking at the Europe Rare Disease Summit!
We’re speaking at Europe Rare Disease Summit hosted by Bamberg Health in Madrid, Spain! See what we’ll be discussing and learn more.
AmazonSmile closing down in February 2023
Amazon has announced that it’s shutting down its charity platform, AmazonSmile by 20 February 2023. Learn more.
We’re Anglonordic Life Science Conference’s Charity of the Year for 2023!
Our rare diseases charity in Cambridge, UK, has been chosen as the Anglonordic Life Science Conference 2023 Charity of the Year! Learn more.
We’re closed for the holidays!
We're closed for the holidays!Beacon HQ is now closed for the holidays whilst our team enjoys a well-earned rest. Emails, social media accounts and phone lines will not be monitored during this time. We'll be back with you bright and early on Tuesday 3rd January. In...
Review of The Cambridge Rare Disease Showcase 2022
Our recap of the Cambridge Rare Disease Showcase is here! Watch our CEO relive the evening and learn the showcase’s highlights and key takeaways. See who attended and what was said in the feedback form!
Beacon turns 10 years old!
Beacon turns 10 years old! See how we’re celebrating a decade of ensuring that no one faces their rare journey alone.
RAREfest22: Unique festival puts rare diseases into the spotlight!
Join us at RAREfest22! Cambridge Rare Disease Network is hosting a free rare disease festival in Cambridge for families with interactive exhibits, talks, films, art and more. Register now!
Join us at the 13th World Orphan Drug Congress Europe!
We’re supporting, speaking and exhibiting at the 13th World Orphan Drug Congress Europe! Claim your ticket to join us. Rare disease patient groups can attend for FREE!