News

 

View all the news that’s fit to print!

We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.

 

News

 

View all the news that’s fit to print!

We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.

 

If you’d like to be amongst the first to know about our event announcements and project updates, subscribe to our newsletter. Our Community Mailing List gives you first access to newly released tickets and keeps you connected with our charity news. Subscribe today!

Please note: We were previously known as Findacure before rebranding as Beacon in 2022.

 

Meet The Willow Foundation

Meet The Willow Foundation

The Willow Foundation prioritises young adults who are living with a rare condition by providing special day experiences free of charge to young people aged 16 to 40 and their families. Learn more about this unique charity from the Willow team and apply for your own special day out or treat box today!

Don’t miss our webinar series!

Don’t miss our webinar series!

Our new webinar series has been announced! ‘Developing your rare disease patient group team from the bottom up’ will consist of three webinars over the next three months looking at recruiting volunteers, finding members of staff and succession planning. Sign up for webinar 1!

May’s RareChat is here!

May’s RareChat is here!

Join our next RareChat – Succession planning: how to know when it’s your time to go. If you’re in the process of stepping down from your group, have recently stepped down or are planning to do so in the future, come share your thoughts!

We’re featured in Pharmafile!

We’re featured in Pharmafile!

Our Marketing and Engagement Manager, Blayne, wrote a piece on rare diseases for Pharmafile’s Autumn edition!
Her section of the magazine explores the ‘Diagnostic Odyssey’ and the psychological and logistical impact rare conditions have on patients and their families. Learn what her article discusses now!

Get your FREE ticket to the International Rare Disease Showcase!

Get your FREE ticket to the International Rare Disease Showcase!

Tickets are now available for the International Rare Disease Showcase! Explore international collaborations that are driving rare disease forward. Come discover the impact and challenges of working in the rare space around the world. Whether you wish to attend a single session or three days of fun, claim your FREE ticket to The International Rare Disease Showcase today!