News
View all the news that’s fit to print!
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
News
View all the news that’s fit to print!
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
If you’d like to be amongst the first to know about our event announcements and project updates, subscribe to our newsletter. Our Community Mailing List gives you first access to newly released tickets and keeps you connected with our charity news. Subscribe today!
Please note: We were previously known as Findacure before rebranding as Beacon in 2022.
AmazonSmile closing down in February 2023
Amazon has announced that it’s shutting down its charity platform, AmazonSmile by 20 February 2023. Learn more.
We’re Anglonordic Life Science Conference’s Charity of the Year for 2023!
Our rare diseases charity in Cambridge, UK, has been chosen as the Anglonordic Life Science Conference 2023 Charity of the Year! Learn more.
We’re closed for the holidays!
We're closed for the holidays!Beacon HQ is now closed for the holidays whilst our team enjoys a well-earned rest. Emails, social media accounts and phone lines will not be monitored during this time. We'll be back with you bright and early on Tuesday 3rd January. In...
Review of The Cambridge Rare Disease Showcase 2022
Our recap of the Cambridge Rare Disease Showcase is here! Watch our CEO relive the evening and learn the showcase’s highlights and key takeaways. See who attended and what was said in the feedback form!
Beacon turns 10 years old!
Beacon turns 10 years old! See how we’re celebrating a decade of ensuring that no one faces their rare journey alone.
RAREfest22: Unique festival puts rare diseases into the spotlight!
Join us at RAREfest22! Cambridge Rare Disease Network is hosting a free rare disease festival in Cambridge for families with interactive exhibits, talks, films, art and more. Register now!
Join us at the 13th World Orphan Drug Congress Europe!
We’re supporting, speaking and exhibiting at the 13th World Orphan Drug Congress Europe! Claim your ticket to join us. Rare disease patient groups can attend for FREE!
New ONLINE workshop with Genetic Alliance UK and Rareminds!
We have joined forces with Genetic Alliance UK and Rareminds to bring you a 4-part online workshop that’s focused on building rare resilience. Register now to gain the tools and strategies needed to look after their own wellbeing, manage expectations, avoid burnout and deal with the distress of others.
Beacon joins the REMEDi4ALL consortium!
Beacon has joined the EU-funded REMEDi4ALL drug repurposing project! Learn more about this UK and EU collaboration now.
We took over the UK airwaves!
We took over the UK airwaves! Beacon was featured on London Live TV, Modern Mindset and more. Our campaign reached 2.1 million! Watch two of our interviews now.
Beacon launches its new Resources Hub
We are pleased to say that our new Resources Hub is now live, and open for registrations. This platform has been designed and built by our team, with the aim of making our e-learning content more engaging and flexible.
We’re hiring for four new positions!
Join our team as either our new Executive Assistant, Fundraising Officer, Scientific Officer or Senior Scientific Officer! View each job description now and check out our benefits. Apply today!
Apply to join Jeans for Genes Grants Panel
Jeans for Genes has exciting news! The charity is looking for two individuals to join their newly created Grants Panel. Apply by 1 August!
Teddington Trust rebrands after merging with XP Support Group (XPSG)
Teddington Trust rebrands as Action for XP after merging with XP Support Group (XPSG), signaling the charity’s next chapter of supporting the Xeroderma Pigmentosum (XP) community!
Monthly roundup: June edition!
Join us at the end of each month as we look back on major developments that have occurred within the rare disease space. Read all the June news!
FOP Friends trustee receives a British Empire Medal in Queen’s Jubilee Honours List
FOP Friends trustee, Helen Bedford-Gay, was named to the Queen’s Jubilee Honours List. Helen was one of 304 recipients of a British Empire Medal (BEM)! Learn more now.
Meet The Willow Foundation
The Willow Foundation prioritises young adults who are living with a rare condition by providing special day experiences free of charge to young people aged 16 to 40 and their families. Learn more about this unique charity from the Willow team and apply for your own special day out or treat box today!
EURORDIS ECRD: Conference to pave the way for the next decade of rare diseases
We’re pleased to announce that our rare disease charity is an official media partner of EURORDIS’ 2022 ECRD. Learn more and register now!
Advances in rare disease made thus far in 2022
Thinking of submitting a lightning talk proposal for The Cambridge Rare Disease Showcase? View some rare disease advances thus far in 2022 for inspiration!
The team is pleased to announce four job role changes!
As a small rare disease charity, our team is constantly learning, evolving and taking on new, additional responsibilities. Please join us in congratulating Mary Rose, Laura, Philippa and Hannah on their new roles!