As a small rare disease charity, our team is constantly learning, evolving and taking on new, additional responsibilities. Please join us in congratulating Mary Rose, Laura, Philippa and Hannah on their new roles!
Farewell and thank you to our graphic design intern, Freya and Costello Medical! We cannot thank Freya’s line manager, Charlotte, and the entire Costello Medical team enough for working with us to conduct a successful joint internship. Freya helped to rebrand our charity and will be greatly missed!
See what the first cohort of our new trustee recruitment programme have been up to!
Our Marketing and Engagement Manager, Blayne, wrote a piece on rare diseases for Pharmafile’s Autumn edition!
Her section of the magazine explores the ‘Diagnostic Odyssey’ and the psychological and logistical impact rare conditions have on patients and their families. Learn what her article discusses now!