Say hello to our new Digital Resources Manager!
Our current Marketing and Engagement Manager, Blayne, will transition roles to become our new Digital Resources Manager. Learn more!
We’re hiring!
Our rare diseases charity in Cambridge, UK is hiring for a new Projects Officer and new Communications Officer. View our charity jobs!
Farewell and good luck to our beloved Phil!
Our Senior Projects Officer, Philippa is leaving our rare diseases charity in May after three and half wonderful years. Read the announcement.
NEW Season 2 ‘Talking in Tandem’ guest illustrations!
View Maryna Kolochavina’s podcast illustrations! She kindly produced these illustrations for the Rarely Heard podcast on a voluntary basis.
We’re published in the Rare Disease Day Campaign 2023!
Our CEO and Marketing & Engagement Manager are published in MediaPlanet UK’s Rare Disease Day campaign! They share how the rare community is working to repurpose drugs. Read now!