Jeans for Genes has exciting news! The charity is looking for two individuals to join their newly created Grants Panel. Apply by 1 August!
Join us at the end of each month as we look back on major developments that have occurred within the rare disease space. Read all the June news!
FOP Friends trustee, Helen Bedford-Gay, was named to the Queen’s Jubilee Honours List. Helen was one of 304 recipients of a British Empire Medal (BEM)! Learn more now.
The Willow Foundation prioritises young adults who are living with a rare condition by providing special day experiences free of charge to young people aged 16 to 40 and their families. Learn more about this unique charity from the Willow team and apply for your own special day out or treat box today!
We’re pleased to announce that our rare disease charity is an official media partner of EURORDIS’ 2022 ECRD. Learn more and register now!