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AmazonSmile closing down in February 2023

AmazonSmile closing down in February 2023

by Beacon

Amazon has announced that it’s shutting down its charity platform, AmazonSmile by 20 February 2023. Learn more.

Review of The Cambridge Rare Disease Showcase 2022

Review of The Cambridge Rare Disease Showcase 2022

by Beacon

Our recap of the Cambridge Rare Disease Showcase is here! Watch our CEO relive the evening and learn the showcase’s highlights and key takeaways. See who attended and what was said in the feedback form!

RAREfest22: Unique festival puts rare diseases into the spotlight!

RAREfest22: Unique festival puts rare diseases into the spotlight!

by Beacon

Join us at RAREfest22! Cambridge Rare Disease Network is hosting a free rare disease festival in Cambridge for families with interactive exhibits, talks, films, art and more. Register now!

Join us at the 13th World Orphan Drug Congress Europe!

Join us at the 13th World Orphan Drug Congress Europe!

by Beacon

We’re supporting, speaking and exhibiting at the 13th World Orphan Drug Congress Europe! Claim your ticket to join us. Rare disease patient groups can attend for FREE!

Apply to join Jeans for Genes Grants Panel

Apply to join Jeans for Genes Grants Panel

by Beacon

Jeans for Genes has exciting news! The charity is looking for two individuals to join their newly created Grants Panel. Apply by 1 August!

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Recent Posts

  • Picking up the baton for Sarah and CASK warriors
  • Why attend Beyond the Student Voice Prize: exploring opportunities in rare diseases
  • Meet Chloe, our new Scientific Projects Officer!
  • ’22 went by in the blink of an eye!
  • Our review of the 13th World Orphan Drug Congress Europe

Recent Comments

  1. Carol Bedford on Meet our Patient Group Engagement Committee members: Chris and Craig!

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