FOP Friends trustee, Helen Bedford-Gay, was named to the Queen’s Jubilee Honours List. Helen was one of 304 recipients of a British Empire Medal (BEM)! Learn more now.
The Willow Foundation prioritises young adults who are living with a rare condition by providing special day experiences free of charge to young people aged 16 to 40 and their families. Learn more about this unique charity from the Willow team and apply for your own special day out or treat box today!
We’re pleased to announce that our rare disease charity is an official media partner of EURORDIS’ 2022 ECRD. Learn more and register now!
Thinking of submitting a lightning talk proposal for The Cambridge Rare Disease Showcase? View some rare disease advances thus far in 2022 for inspiration!
Patient advocacy groups like Cystinosis Research Network (CRN) are a lifeline for those living with cystinosis. Learn the importance of patient groups and share in support of the 5th Annual Cystinosis Awareness Day!