NEW Season 2 ‘Talking in Tandem’ guest illustrations!
View Maryna Kolochavina’s podcast illustrations! She kindly produced these illustrations for the Rarely Heard podcast on a voluntary basis.
We’re published in the Rare Disease Day Campaign 2023!
Our CEO and Marketing & Engagement Manager are published in MediaPlanet UK’s Rare Disease Day campaign! They share how the rare community is working to repurpose drugs. Read now!
This is Rare: The voice of the rare community
Our Senior Projects Officer, Philippa joined This is Rare, a Sanofi UK-sponsored campaign that puts the voices of the rare disease community centre stage. She and the rare community attended Abbey Road Studios to share the rare experience through music and song. Watch This is Rare performance!
AmazonSmile closing down in February 2023
Amazon has announced that it’s shutting down its charity platform, AmazonSmile by 20 February 2023. Learn more.
Review of The Cambridge Rare Disease Showcase 2022
Our recap of the Cambridge Rare Disease Showcase is here! Watch our CEO relive the evening and learn the showcase’s highlights and key takeaways. See who attended and what was said in the feedback form!