Announcing our next webinar, international patient registries in January 2020

by | Dec 19, 2019

Following on from our patient registries workshop, Findacure is excited to announce our latest webinar on building an international patient registry in collaboration with pulse infoframe.

Due to the international aspect of rare diseases and different patient groups, the webinar will focus on how to set up or expand your patient registry on an international level. As experts on international registries, our speakers from pulse infoframe will discuss the rules and regulations that are involved with international registries, benefits of having an international registry and advice on how to set up an international registry and deal with associated challenges.