Beacon turns 10 years old!

by | Nov 7, 2022

Can you believe that our rare disease charity is 10 years old?!

It feels like yesterday that Dr. Nick Sireau and Dr. Tony Hall founded Beacon for rare diseases (then known as Findacure) in the summer of 2012.

Ahhh the memories 🥰

It’s been quite the decade, but let us not forget that it all began with a TED Talk from our co-founder Dr Nick Sireau.

Nick gave a TED Talk on his son’s ultra-rare disease, alkaptonuria (also known as AKU or Black Bone Disease) and discussed why he founded Beacon (then known as Findacure) in the first place: to give patient groups the tools they needed to form, grow and professionalise.

Watch Nick’s TED Talk to learn his and our story!

From there, our rare disease charity in Cambridge, UK took off!

After hard work and determination, Nick and our co-founder Dr Tony Hall registered Beacon (then known as Findacure) as an official charity. We now had a shiny new registered charity number!

Now that you know our humble beginnings, head over to our social media (Twitter, LinkedIn and Facebook) to see where we’ve been over the last decade.

View our accomplishments and success, and get ready to join us for another 10 years of ensuring that no one faces their rare journey alone.