Can you believe that our rare disease charity is 10 years old?!
It feels like yesterday that Dr. Nick Sireau and Dr. Tony Hall founded Beacon for rare diseases (then known as Findacure) in the summer of 2012.
Ahhh the memories 🥰
It’s been quite the decade, but let us not forget that it all began with a TED Talk from our co-founder Dr Nick Sireau.
Nick gave a TED Talk on his son’s ultra-rare disease, alkaptonuria (also known as AKU or Black Bone Disease) and discussed why he founded Beacon (then known as Findacure) in the first place: to give patient groups the tools they needed to form, grow and professionalise.
Watch Nick’s TED Talk to learn his and our story!
Keep your eyes peeled for a 10th birthday celebration page, complete with a timeline of our major achievements and a downloadable 10 year Impact Report!
In the meantime, help celebrate our birthday all week long by sharing your favorite Beacon or Findacure moment with us using the hashtag #BeaconsBirthdayBash on social media.