Become a trustee and support the rare disease community

by | Mar 29, 2019

Take your chance to support the millions of patients living with rare diseases throughout the UK.

Findacure is a UK-based rare disease charity that transforms the way the world sees rare diseases. We work with rare disease patient groups to help accelerate their growth, raise awareness, support patients, and get involved in vital research.

We are entering a new phase as a charity, looking to grow our team, unify our patient focused projects, and increase our reach. We are recruiting new voluntary trustees to help us along this journey. Previous experience is not necessary and we welcome applications from and backgrounds.

Our new trustees will have skills in the following areas:

Fundraising and finance – to help identify new and sustainable funding streams and oversee our financial management.

Charity management and governance – to help guide our strategic growth and develop policies for a larger, more professional Findacure.

Rare disease experience – to help with priority setting and bring lived experience to our decision making.

Online and digital skills – to help us develop our digital resources and our international reach.

As a trustee you will benefit from:

  • The chance to shape and potentially deliver projects that will benefit patients living with some of the rarest conditions in the world.
  • Opportunities to guide the strategic growth of the charity.
  • The ability to grow your network.
  • Induction to the charity and role, with opportunities for training.

The expected time commitment is four two-hour trustee meetings per year, at least one of which will be held in person in London. Our trustees also attend at least one day-long Findacure event annually, and take part in an annual strategy meeting with the Findacure team.

If you are interested in applying you can contact our CEO Rick Thompson at to arrange an informal call. You can download our application pack, to find a full job description, the skills we are interested in acquiring, and the application process.

If you’d like to spread the word about this opportunity, please share our trustee advertisement.

Deadline for applications – 29th April 2019

Successful applicants will be asked for interview – Held at Findacure’s offices in Cambridge, in May.