We are delighted to unveil our new website!
With a host of exciting new features, our website now offers enhanced accessibility, improved functionality and better adaptability across all devices. We have consolidated our content under a sleek new layout, ensuring interaction with our site is now streamlined for our audience.
Our Chief Operating Officer, Mary Rose, invested tremendous effort into crafting a visually captivating and user-friendly site. Recognising the significance of accessible online platforms for rare disease patient groups and charities, we dedicated ourselves to implementing these transformative changes.
These updates are designed to elevate the user experience and ensure positive engagement with our website. But it doesn’t end there! We’ll be adding additional features in the near future, including the ability to add and promote events taking place within the community. Watch this space!
We invite you to explore our brand new site, delve into our thought provoking blogs, discover our upcoming events, delve into The Resources Hub, and get acquainted with our exceptional team.
Explore the site
Check our the latest Beacon news!
- Apply to be our new Fundraising Manager!
- Book your early bird tickets to our upcoming London Rare Disease Showcase!
Read our blogs and case studies
- Hear from Cailin who shared her rare experience living with Hao Fountain Syndrome.
- Meet Amanda, Trustee and Chair of EOS Network and see what she’s achieved through working with Beacon.
Have a rare story that you’d like to share with the community? Find out how you can write for our blog!
Can you spot Jasper?
You might be wondering, “who is Jasper?” Well, let us enlighten you!
During the process of rebuilding our website, Mary Rose used photos of her feline companion, Jasper, as temporary images. As a fun little game, we’ve intentionally hidden one image of Jasper somewhere within our website.
Your mission, should you choose to accept it, is to embark on a captivating journey through our website and notify us the moment you discover Jasper’s secret hiding spot!
Prepare yourself for a thrilling deep-dive into the intricacies of our website as you engage in this delightful quest. Happy hunting!
See our behind the scenes shots!
See anything that’s not right on the website? Contact maryrose@rarebeacon.org to let us know!
