We’re speaking at the Europe Rare Disease Summit!

by | Feb 1, 2023

We’re thrilled to announce that we’ll be speaking at the Europe Rare Disease Summit 2023 in Madrid this February!

Philippa will be speaking on “The patient’s voice as a driver of access and drug approvals” panel session with leaders from the Federation of European Scleroderma Associations, FH Europe, European Dravet Syndrome Federation and the Association NMO France.


The Europe Rare Disease Summit is hosted by Bamberg Health and will be a hybrid event in Madrid, Spain at Hotel Ilunion Pio XII on 15 February 2023!

The Europe Rare Disease Summit

European decision-makers come together for rare disease and orphan drugs

With Rare Disease Day coming up, Bamberg Health, in collaboration with key stakeholders, is organizing the Europe Rare Disease Summit in Madrid.

The objective of the Summit is to discuss the key trends and topics relating to diagnostics and treatments for rare diseases. 

Attendees will explore the challenges to timely and equitable access to orphan drugs and delve into European initiatives for access, research and innovation programs that are designed to improve the lives of those living with a rare disease.

The event will be attended by governmental authorities and regulatory agencies, large public and private hospital groups, research centers, pharmaceutical and patient associations, scientific societies and health professionals from all over the region.

View the program and full agenda now!

Topics of discussion:


  • National plans, policies and government initiatives for rare diseases
  • Innovation and access to Orphan Drugs: Challenges and opportunities
  • The role of artificial intelligence in overcoming the challenges of rare diseases-specific registry and diagnostics
  • Advances in rare disease diagnosis and treatments: Gene therapies
  • Viral vector & mRNA technologies: Implementation and future development for rare diseases
  • The patient’s voice as a driver of access and drug approvals

“There is still room to improve investment & R&D spending in Europe. The Europe Rare Disease Summit 2023 brings together the right stakeholders to discuss how we can continue to build a rare disease ecosystem where innovation can flourish”

Alexander Natz

Secretary General, European Confederation of Pharmaceutical Entrepreneurs (EUCOPE)

How to register

Can’t make the trip to Madrid to attend in person?

You’re invited to attend virtually!

We have 30 virtual tickets that can be claimed, so register to attend virtually now!

If you’d like to attend in person, register now to enjoy a 20% off discount on your ticket courtesy of Bamberg Health!

About Bamberg Health

Bamberg Health is a networking platform for healthcare professionals focused on providing new insights and coverage on healthcare management and innovation through virtual and live events. Bamberg Health offers a place where professionals can meet to exchange knowledge and do business without obstacles, helping to propel the pharmaceutical and healthcare industries forward.

Twitter: @bambergHealth
LinkedIn: Bamberg Health