Webinar one | How to successfully recruit and manage volunteers

Online at Zoom

Webinar series announced! Developing your rare disease patient group from the bottom upBeacon is delighted to announce our next webinar series, this series will consist of three webinars over the next three months (May - July) looking at how rare disease patient groups can attract and retain the right people to ensure their organisation's success […]

RareChat | Patient group experiences of collaborating with industry

Online at Zoom

Next RareChat announced: Experiences of collaborating with industry! Collaboration between patient groups and industry is critical to be able to drive research into your rare condition, develop treatments and gather data. However, navigating these partnerships, whether it be with pharmaceutical companies, CROs or other industry representatives, can be complicated and overwhelming. In this RareChat, we […]

The Cambridge Rare Disease Showcase

The Clayton Hotel

After three years, we are delighted to announce the return of our long-awaited Cambridge Rare Disease Showcase; our first in-person event since 2020! The Rare Disease Showcase is an event series that celebrates the innovative rare disease projects taking place across the UK and wider world.

In-person workshop | Demonstrating impact: the key to a successful rare disease patient group

The View in The Royal College of Surgeons of England 38-43 Lincoln's Inn Fields, London

Wednesday 13th July from 10 am - 4:30 pm BST at The Royal College of Surgeons in LondonBeacon is delighted to announce the first in-person workshop since 2020 - Demonstrating impact: the key to a successful rare disease patient group. As a patient group, your impact is the difference you make to your community, whether […]

RareChat | Resilient leadership: What is your experience?

Online at Zoom

Leading a rare disease community is unique in its demands, and can be both rewarding and demanding. Whether you are a sole worker or part of a team, come and discuss with other rare disease advocates the challenges of juggling your own psychological wellbeing with that of your community. Join us to discuss: • The […]

Webinar three | How to choose the next you: where to start with succession planning

Online at Zoom

Developing your rare disease patient group from the bottom up - you can now sign up for the third webinar in the series!This series will look at how rare disease patient groups can attract and retain the right people to ensure their organisation's success and longevity. It kicked off back in May with a session […]

In-person workshop | Building positive partnerships between patient groups and industry

The Royal Institution

In-person workshop: Building positive partnerships between patient groups and industry 10:00 - 16:00, 21st September 2022, The Royal Institution, LondonWe are delighted to announce our next in-person workshop focusing on how to build positive and equitable partnerships between patient groups and the life sciences industryCollaborating with the pharmaceutical industry is often a key aim for […]

Drug Repurposing for Rare Diseases 2022

America Square Conference Centre

Our annual conference, Drug Repurposing for Rare Diseases, highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. Our conference sparks cross-sector conversation, uniting the expertise of diverse groups to inspire meaningful, patient-centred drug repurposing research for rare diseases.