Webinar series announced! Developing your rare disease patient group from the bottom upBeacon is delighted to announce our next webinar series, this series will consist of three webinars over the next three months (May - July) looking at how rare disease patient groups can attract and retain the right people to ensure their organisation's success […]
Developing your rare disease patient group from the bottom up - you can now sign up for the second webinar in the series!This series will look at how rare disease patient groups can attract and retain the right people to ensure their organisation's success and longevity. The series kicks off on the 26th of May […]
After three years, we are delighted to announce the return of our long-awaited Cambridge Rare Disease Showcase; our first in-person event since 2020! The Rare Disease Showcase is an event series that celebrates the innovative rare disease projects taking place across the UK and wider world.
Wednesday 13th July from 10 am - 4:30 pm BST at The Royal College of Surgeons in LondonBeacon is delighted to announce the first in-person workshop since 2020 - Demonstrating impact: the key to a successful rare disease patient group. As a patient group, your impact is the difference you make to your community, whether […]