Repeat! How to be the best leader for your community
This masterclass series is for rare disease patient group leaders who want to improve their leadership skills. It will give participants the opportunity to work one-on-on...
Events
There are plenty of upcoming events for you to choose from, such as patient group trainings, masterclasses, conferences and more. We host events in-person, online, in London, Cambridge and other destinations around the UK.
We strive to ensure all our events are as accessible as possible for attendees, whether they’re face-to-face or virtual. To discuss your specific needs, please get in touch with our Projects Team at projects@rarebeacon.org so we can work together to accommodate you.
Browse through our latest events below to see what strikes your fancy and sign up to attend today.
We look forward to seeing you at a Beacon event soon!
Better together: Patient group collaboration
Join us in London to explore the opportunities and value of patient group collaboration and hear from the people doing it!
Building stronger partnerships with industry
A workshop for rare disease patient groups and industry partners who want to build stronger, more equal partnerships.
REMEDi4ALL Repurposing Bootcamp for Patient Representatives
The REMEDi4ALL Repurposing Bootcamp is a specialised training programme designed to empower patient representatives with the essential knowledge and tools to drive innova...
Events in the community
Share your event
Do you have an upcoming event in the rare disease community? We’d love to feature it on this page!
Help us expand our community calendar and ensure that vital opportunities are accessible to all. Submit your event details through our form below and join us in ensuring no one faces their rare journey alone.
Our form will load in a new pop-up window, however should you encounter any problems you can also complete it here.
Please note: we feature events aimed at all stakeholders in the rare disease community. However, in keeping with our mission, at least one of your target audiences must be rare disease patient groups.
