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Subscribe to our mailing lists to keep up-to-date with the latest Beacon news!
We encourage you to subscribe to The Beacon Bulletin to be updated weekly on our upcoming events and projects. This gives you access to our events as soon as they’re announced. If you’d like a monthly recap of our events and the rare community’s news, subscribe to Beacon’s Rare Rundown.
Join in the fun. Subscribe to The Beacon Bulletin and Beacon’s Rare Rundown today!
The Beacon Bulletin
Hear it here first!
The Beacon Bulletin is the first port of call for all updates and announcements of Beacon events and projects.
Subscribe for a weekly dose of news to ensure that you never miss an opportunity.
Beacon's Rare Rundown
See what you missed each month to stay in the know.
The Rare Rundown delivers a monthly round-up of the latest news and updates from Beacon and the wider rare disease community.
Subscribe to keep a pulse on the community!
Our newsletters are hosted on MailChimp. Any data you provide will be stored on Mailchimp and Beacon’s own server. Your information will never be shared with any third parties and you can opt out of emails at any time by clicking on ‘unsubscribe’ at the bottom of our emails.
How do we handle your data: the small print
Beacon has two types of mailing lists. Our two periodic mailing lists are open for anyone to join, and all require your consent for us to contact you and hold your data.
We hold contact details for Beacon’s monthly newsletter and our community mailing list. Beacon’s mailing lists are administered through MailChimp, who store the name and email address of all individuals on the mailing list and track information on engagement with the messages sent. MailChimp’s privacy policy can be viewed here. Beacon holds a digital copy of all mailing lists on our own server, including records of consent.
Only individuals who specifically opt in to receive a mailing list, either through our sign up forms or a specific question within event and project registration, will receive messages and have their details stored. You may choose to stop receiving either mailing list at any time through a link provided at the end of all mailing list emails, as part of any event registration process, or by contacting us at data@rarebeacon.org.
Read more on our privacy policy here.