Subscribe to our mailing lists to keep up-to-date with the latest Beacon news!

We encourage you to subscribe to our Community Mailing List to be updated weekly on our upcoming events and projects. This gives you access to our events as soon as they’re announced. If you’d like a monthly recap of our events and the rare community’s news, subscribe to our Monthly Newsletter.

Join in the fun. Subscribe to our Community Mailing List and Monthly Newsletter today!

Community mailing list

Hear it here first!

Our Community Mailing List is the first port of call for all Beacon events and project announcements.

Subscribe for a weekly dose of news to ensure that you never miss an opportunity.

Monthly newsletter

See what you missed each month to stay in the know.

Our newsletter delivers a monthly round-up of the latest news from Beacon and the wider rare disease community.

Subscribe to keep a pulse on the community!

Our Community Mailing List and Monthly Newsletter are hosted on MailChimp. Any data you provide will be stored on Mailchimp and Beacon’s own server. Your information will never be shared with any third parties and you can opt out of emails at any time by clicking on ‘unsubscribe’ at the bottom of our emails.

How do we handle your data: the small print

Beacon has two types of mailing lists. Our two periodic mailing lists are open for anyone to join, and all require your consent for us to contact you and hold your data.

We hold contact details for Beacon’s monthly newsletter and our community mailing list. Beacon’s mailing lists are administered through MailChimp, who store the name and email address of all individuals on the mailing list and track information on engagement with the messages sent. MailChimp’s privacy policy can be viewed here. Beacon holds a digital copy of all mailing lists on our own server, including records of consent.

Only individuals who specifically opt in to receive a mailing list, either through our sign up forms or a specific question within event and project registration, will receive messages and have their details stored. You may choose to stop receiving either mailing list at any time through a link provided at the end of all mailing list emails, as part of any event registration process, or by contacting us at

Read more on our privacy policy here.