News
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
If you’d like to be amongst the first to know about our event announcements and project updates, subscribe to our newsletter. The Beacon Bulletin gives you first access to newly released tickets and keeps you connected with our charity news. Subscribe today!
Please note: We were previously known as Findacure before rebranding as Beacon in 2022.
Volunteer at Beacon!
Beacon for Rare Diseases is looking for a Trusts and Foundations Volunteer, to assist our Fundraising Team and help us secure vital funding that...
We’re hiring a new Senior Scientific Projects Officer!
Beacon for Rare Diseases is seeking a Senior Scientific Projects Officer to join our established team and support us through the next stage in our...
Announcing The Student Voice Prize 2023 winning essays!
Earlier this month the winner and runners-up for the biggest Student Voice Prize to date were announced. We're excited to share that the winning...
We’re hiring a new Events and Projects Officer!
Beacon is seeking an entry-level Events and Projects Officer to join our established Projects Team and support us through the next stage in our...
Introducing the first international drug repurposing conference!
Our previous drug repurposing conferences have been a huge success, and this year we are thrilled to be teaming up with REMEDi4ALL, and MeRIT to...
Our new deposit system
Since Beacon’s establishment in 2012, our focus has been on providing free, comprehensive training to rare disease patient groups. Over the past 11...
Office Christmas closure
The Beacon office is now closed while our team enjoyed a well earned break over the festive period.The office will be closed from Friday 22nd of...
We’ve been published in the Guardian!
We are excited to announce our involvement with MediaPlanetUK on the Rare Disease Campaign 2023. The campaign launched last Friday in The Guardian...
Beacon is thrilled to hear that the UK is re-joining Horizon Europe!
Our response to the UK re-joining Horizon Europe:We are delighted that the UK is rejoining Horizon Europe, a scientific research initiative which...
Our statment on patient funding and conflict of interest
Our statment on patient funding and conflict of interestWe would like to take the oportunity to address a recent article published by The Observer...
Exciting news for the Beacon team!
Exciting changes for our team!We are so excited to announce that we have two new members of the team! Say hello to our new Communications Officer,...
Our new website has launched!
We are delighted to unveil our new website!With a host of exciting new features, our website now offers enhanced accessibility, improved...
Apply to be our new Fundraising Manager
We are hiring!We are excited to announce a new opportunity to join Team Beacon! Following 10 successful years of operation, we are seeking an...
We’re hiring for a Scientific Projects Officer!
Could you be our new Projects Officer on our Scientific team? This is the perfect entry to junior-level role for a scientific graduate or individual...
Farewell to and good luck to our beloved Phil!
It is with a very heavy heart that we must inform you that our beloved Project Manager, Philippa (Phil) will be leaving us in May. We are...
Volunteer at Beacon!
Beacon for Rare Diseases is looking for a Trusts and Foundations Volunteer, to assist our Fundraising Team and help us secure vital funding that...
We’re hiring a new Senior Scientific Projects Officer!
Beacon for Rare Diseases is seeking a Senior Scientific Projects Officer to join our established team and support us through the next stage in our...
Announcing The Student Voice Prize 2023 winning essays!
Earlier this month the winner and runners-up for the biggest Student Voice Prize to date were announced. We're excited to share that the winning...
We’re hiring a new Events and Projects Officer!
Beacon is seeking an entry-level Events and Projects Officer to join our established Projects Team and support us through the next stage in our...
Introducing the first international drug repurposing conference!
Our previous drug repurposing conferences have been a huge success, and this year we are thrilled to be teaming up with REMEDi4ALL, and MeRIT to...
Our new deposit system
Since Beacon’s establishment in 2012, our focus has been on providing free, comprehensive training to rare disease patient groups. Over the past 11...
Office Christmas closure
The Beacon office is now closed while our team enjoyed a well earned break over the festive period.The office will be closed from Friday 22nd of...
We’ve been published in the Guardian!
We are excited to announce our involvement with MediaPlanetUK on the Rare Disease Campaign 2023. The campaign launched last Friday in The Guardian...
Beacon is thrilled to hear that the UK is re-joining Horizon Europe!
Our response to the UK re-joining Horizon Europe:We are delighted that the UK is rejoining Horizon Europe, a scientific research initiative which...
Our statment on patient funding and conflict of interest
Our statment on patient funding and conflict of interestWe would like to take the oportunity to address a recent article published by The Observer...
Exciting news for the Beacon team!
Exciting changes for our team!We are so excited to announce that we have two new members of the team! Say hello to our new Communications Officer,...
Our new website has launched!
We are delighted to unveil our new website!With a host of exciting new features, our website now offers enhanced accessibility, improved...
Apply to be our new Fundraising Manager
We are hiring!We are excited to announce a new opportunity to join Team Beacon! Following 10 successful years of operation, we are seeking an...
We’re hiring for a Scientific Projects Officer!
Could you be our new Projects Officer on our Scientific team? This is the perfect entry to junior-level role for a scientific graduate or individual...
Farewell to and good luck to our beloved Phil!
It is with a very heavy heart that we must inform you that our beloved Project Manager, Philippa (Phil) will be leaving us in May. We are...