News
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
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Please note: We were previously known as Findacure before rebranding as Beacon in 2022.

We’ve been published in the Guardian!
We are excited to announce our involvement with MediaPlanetUK on the Rare Disease Campaign 2023. The campaign launched last Friday in The Guardian...

Beacon is thrilled to hear that the UK is re-joining Horizon Europe!
Our response to the UK re-joining Horizon Europe:We are delighted that the UK is rejoining Horizon Europe, a scientific research initiative which...

Our statment on patient funding and conflict of interest
Our statment on patient funding and conflict of interestWe would like to take the oportunity to address a recent article published by The Observer...

Exciting news for the Beacon team!
Exciting changes for our team!We are so excited to announce that we have two new members of the team! Say hello to our new Communications Officer,...

Our new website has launched!
We are delighted to unveil our new website!With a host of exciting new features, our website now offers enhanced accessibility, improved...

Apply to be our new Fundraising Manager
We are hiring!We are excited to announce a new opportunity to join Team Beacon! Following 10 successful years of operation, we are seeking an...

We’re hiring for a Scientific Projects Officer!
Could you be our new Projects Officer on our Scientific team? This is the perfect entry to junior-level role for a scientific graduate or individual...

Farewell to and good luck to our beloved Phil!
It is with a very heavy heart that we must inform you that our beloved Project Manager, Philippa (Phil) will be leaving us in May. We are...

Rarely Heard named Top 25 UK Disease Podcasts on the web!
We’re thrilled to announce that The Rarely Heard Podcast has been named one of Feedspot’s Top 25 UK Disease Podcasts on the web! The Rarely Heard...

Meet our new Digital Resources Manager (you already know her!)
Our Marketing and Engagement Manager, Blayne, isn't going anywhere!We’re thrilled to announce that Blayne will transition roles to become our new...

Farewell to Chloe
We are sad to inform you that Chloe Eyre, our Scientific Projects Officer, has left the organisation. We want to thank Chloe for all of her work on...

We’re hiring!
The Beacon team is growing again!Whether you fancy a career change or your first job out of university, we have the perfect position for you. Apply...

This is Rare: the voice of the rare community
Our Projects Manager, Phil, can sing!Phil joined This is Rare, a Sanofi UK-sponsored campaign that puts the voices of the rare disease community...

Juliet is running the Gear 10k for Beacon!
Our office budy, Juliet is taking on the ultimate fitness challenge by running the Recipharm Grand East Anglia Run (GEAR) 10K in King’s Lynn this...

We’re Anglonordic Life Science Conference’s Charity of the Year for 2023
We are delighted to announce that we’ve been chosen by Anglonordic Life Science Conference as their Charity of the Year for 2023! This selection...

We’ve been published in the Guardian!
We are excited to announce our involvement with MediaPlanetUK on the Rare Disease Campaign 2023. The campaign launched last Friday in The Guardian...

Beacon is thrilled to hear that the UK is re-joining Horizon Europe!
Our response to the UK re-joining Horizon Europe:We are delighted that the UK is rejoining Horizon Europe, a scientific research initiative which...

Our statment on patient funding and conflict of interest
Our statment on patient funding and conflict of interestWe would like to take the oportunity to address a recent article published by The Observer...

Exciting news for the Beacon team!
Exciting changes for our team!We are so excited to announce that we have two new members of the team! Say hello to our new Communications Officer,...

Our new website has launched!
We are delighted to unveil our new website!With a host of exciting new features, our website now offers enhanced accessibility, improved...

Apply to be our new Fundraising Manager
We are hiring!We are excited to announce a new opportunity to join Team Beacon! Following 10 successful years of operation, we are seeking an...

We’re hiring for a Scientific Projects Officer!
Could you be our new Projects Officer on our Scientific team? This is the perfect entry to junior-level role for a scientific graduate or individual...

Farewell to and good luck to our beloved Phil!
It is with a very heavy heart that we must inform you that our beloved Project Manager, Philippa (Phil) will be leaving us in May. We are...

Rarely Heard named Top 25 UK Disease Podcasts on the web!
We’re thrilled to announce that The Rarely Heard Podcast has been named one of Feedspot’s Top 25 UK Disease Podcasts on the web! The Rarely Heard...

Meet our new Digital Resources Manager (you already know her!)
Our Marketing and Engagement Manager, Blayne, isn't going anywhere!We’re thrilled to announce that Blayne will transition roles to become our new...

Farewell to Chloe
We are sad to inform you that Chloe Eyre, our Scientific Projects Officer, has left the organisation. We want to thank Chloe for all of her work on...

We’re hiring!
The Beacon team is growing again!Whether you fancy a career change or your first job out of university, we have the perfect position for you. Apply...

This is Rare: the voice of the rare community
Our Projects Manager, Phil, can sing!Phil joined This is Rare, a Sanofi UK-sponsored campaign that puts the voices of the rare disease community...

Juliet is running the Gear 10k for Beacon!
Our office budy, Juliet is taking on the ultimate fitness challenge by running the Recipharm Grand East Anglia Run (GEAR) 10K in King’s Lynn this...

We’re Anglonordic Life Science Conference’s Charity of the Year for 2023
We are delighted to announce that we’ve been chosen by Anglonordic Life Science Conference as their Charity of the Year for 2023! This selection...