How to raise money for Beacon

There are many ways you can raise money for Beacon and help ensure no one walks their rare journey alone. 

Support our mission and those living with a rare disease by fundraising for Beacon!

Rare disease can touch a person’s life at any moment. Showing your support for a family member, friend or colleague who has been diagnosed with a rare condition is easy when you fundraise with us. We are proud to offer a variety of fun fundraising ideas to help you make a life-changing difference to those you love and the wider rare community.

You have the power to change the narrative of rare disease.


Your support and donation will transform lives and ensure that no one faces their rare journey alone.

A little goes a long way. Even the smallest support and donation make a substantial difference.

If you haven’t decided on which fundraising activities you want to pursue, allow us to offer some of our favourites to get you started! 


  • Bake sales at work
  • Challenge events, such as marathons, sponsored skydives, swim or bike challenges
  • Pub quizzes
  • A charity auction
  • Street collections in your local area
  • A non-uniform day at school  

Our work is powered by your donations and support. We are exceptionally grateful that you share our vision and mission!

If you don’t have the time to organise your own fundraising event, view our quick fundraising ideas below to give back in a simple and fun way. Donate to Beacon today!

    Make a donation via Give as You Live

    Make a donation to us today to make an impactful difference in the lives of those living with rare disease!

    Run a Facebook fundraiser

    Have a birthday or anniversary coming up? Consider running a Facebook fundraiser! Facebook birthday fundraisers are perfect for those who would like their family and friends to forgo gifts and donate to Beacon instead.

    It’s easy to set up a Facebook fundraiser for your big day. View Facebook’s guide and donate to Beacon in celebration today!

    Facebook logo

    Give as you Live

    Shoppers, listen up. This one is for you!

    You can now shop at over 5,500 stores while raising money for Beacon with Give as you Live. We receive 100% of the free donations you raise. By shopping online at stores, such as eBay, Argos, Expedia and trainline, you’ll help to raise the vital funds needed to support our work.

    We highly encourage you to download the Give as you Live app, so you can shop and donate on the go. If you’d like to be reminded to shop via Give as you Live, download the free Donation Reminder Chrome extension to never miss a donation or sale!

    Give as you live logo


    Okay, fashionistas. It’s time to clear out your closet for a good cause!

    We are officially on Thrift+, which means you can now donate your unwanted clothes to Thrift+ and raise funds for Beacon!

    Thrift+ is essentially an online charity shop. They are helping millions of individuals turn their unwanted belongings into billions of pounds of funding for worthwhile causes across the world. Each bag of donated clothing aims to generate £20 for our rare disease charity. Each bag also gives you shopping credit on the Thrift+ website as a thank you. Now you can switch over your wardrobe, support us and join in the #FashionForGood movement!

    Watch our video for more information on how to donate with Thrift+!

    Nice genes

    Nice genes is a company that’s near and dear to our heart, as it donates 100% of its net profits to scientific research and patient support group organisations!

    Nice genes is a streetwear brand that marries science with youth culture to inspire future generations of science and patient group advocates. The company is dedicated to making a positive impact with its apparel. Nice genes actively supports organisations that are addressing the unmet medical needs of rare disease patients.

    Nice genes has generously named Beacon one of its rare disease charity partners. This means that you can shop the entire website and donate to Beacon by selecting us as your preferred rare disease charity. Shop Nice genes hoodies and T-shirts now to support science research, patient groups and us! You’ll look great doing so.

    Beacon flame logo

    Leave a gift in your will

    Considering leaving money to charity in your will? We would be honoured if you decided to leave a legacy gift to Beacon. In doing so, you would be helping to create a brighter future for rare disease patients and their families. Your gift would ensure that our vital work continues.

    Your donation would help us to professionalise more rare disease patient groups so that more could form, grow and thrive. You will help to ensure that no one faces their rare journey alone for generations to come. 

    Write your will for free

    We all know the importance of writing a will, which is why we’ve partnered with Kwil to give you the opportunity to write your will online in as little as 30 minutes.

    Once your will is complete, simply add the code BEACON at the checkout and there will be nothing to pay.

    Learn how to write your will for free now!

    Have an idea? Get in touch!

    If any of the above interests with you, or you have a plan of your own, email our Fundraising Team at to discuss your fundraising event ideas.

    They’ll be happy to provide you with advance and fundraising materials.

    Thank you for considering raising money for Beacon!