Case studies and testimonials

Read our case studies and testimonials to see what we can accomplish together! 

Our patient group trainings, rare community projects and drug repurposing initiatives transcend sectors and borders. We’ve helped countless rare disease patient groups reach their advocacy goals and overcome diverse challenges. We’ve collaborated with stakeholders to improve the rare disease landscape for the benefit of all rare conditions. We are ensuring that no one faces their rare journey alone.

Don’t just take our word for it, though!

Read our case studies and testimonials to hear what our patient groups and collaborators have to say about our work. Our beneficiaries and collaborators know us best. Their achievements are our achievements. We help each other to succeed so that we can shine one, collective light on rare disease. Together, the rare community is stronger than the sum of its parts.

Case studies

Testimonials

FOP Friends

FOP Friends

I became a “rare leader” in 2009 when my eldest son was diagnosed with the ultra-rare genetic...

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Behçet’s UK

Behçet’s UK

Without the help of Beacon I could not have achieved what I have as chair of Behçet’s UK this past...

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MdDs

MdDs

Findacure, now Beacon, was my metaphorical lighthouse in a stormy sea when I started advocating...

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If you’d like a case study of your organisation featured on our website, or wish to provide a testimonial, get in touch with our team today!