We produce a weekly blog to share what we have been up to alongside the rare community. You’ll often find our team celebrating a work anniversary, welcoming a new team member, thanking our sponsors or writing an event recap on our blog. We thoroughly enjoy writing opinion pieces and summarising the reports that matter most to the rare community.

Our blog doesn’t just exist for us – it exists for you! We welcome guest blog posts from the community to help break the isolation felt by those living with rare disease. If you want to share your lived experiences to help others, visit our Share your story page to learn how to write for our blog.

We hope that you enjoy reading stories from us and the rare disease community!

Please note: We were previously known as Findacure before rebranding as Beacon in 2022.

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