Blog

We produce a weekly blog to share what we have been up to alongside the rare community. You’ll often find our team celebrating a work anniversary, welcoming a new team member, thanking our sponsors or writing an event recap on our blog. We thoroughly enjoy writing opinion pieces and summarising the reports that matter most to the rare community.

Our blog doesn’t just exist for us – it exists for you! We welcome guest blog posts from the community to help break the isolation felt by those living with rare disease. If you want to share your lived experiences to help others, visit our Share your story page to learn how to write for our blog.

We hope that you enjoy reading stories from us and the rare disease community!

Please note: We were previously known as Findacure before rebranding as Beacon in 2022.

Latest blogs

Previous blogs

Goodbye to Abby!

Goodbye to Abby!

Last month we said farewell to our wonderful Scientific Projects Officer, Abby! Abby played a huge...

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Farewell to Sophie!

Farewell to Sophie!

We are sorry to announce that our Projects Officer, Sophie is leaving Beacon. During her time here...

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