Beacon for rare diseases logo
  • #iDR25
  • Events
  • News
  • Blog
  • The Resources Hub
  • Subscribe
  • Contact
  • Donate
  • About us
    • Who we are
    • Our history
    • Who we help
    • Meet the team
    • Our commitment
    • Published work
    • Press
  • Rare diseases
    • What are rare diseases?
    • Why patient groups matter
    • Why we use the term rare disease
  • Patient group training
    • Our training
    • The Resources Hub
    • Upcoming training
      • Mentoring programme 2024-25
  • Rare community
    • Community building
    • Rare disease showcase
    • The Student Voice Prize
    • Rarely Heard Podcast
    • Case studies
    • Share your story
  • Research
    • Rare disease research
    • Drug repurposing
    • REMEDi4ALL
    • MCDS-Therapy
    • Social impact bond
  • Support us
    • Why support us?
    • Individuals
    • Volunteers
    • Corporates and Trusts
    • Our supporters
    • Donate
Beacon for rare diseases logo
  • About us
  • Rare diseases
  • Patient group training
  • Rare community
  • Research
  • Support us
  • Events
  • News
  • Blog
  • Subscribe
  • Contact us
  • Donate
  • Careers

Connect with us:

  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
Donate
Contact
Privacy Policy
Cookie Policy
Reachdeck
Events
Subscribe
Resources Hub
Registered with the Fundraising Regulator logo

Charity registration number: 1149646  |  Company registration number: 8174973

Beacon: for rare diseases, 66 Devonshire Road, Cambridge, United Kingdom, CB1 2BL

Connect with us:

  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
Donate
Registered with the Fundraising Regulator logo
Contact
Privacy Policy
Reachdeck
Events
Subscribe
Resources Hub

Beacon: for rare diseases  |  Charity registration number: 1149646  |  Company registration number: 8174973

66 Devonshire Road, Cambridge, United Kingdom, CB1 2BL

Manage Cookie Consent
To provide the best experiences, we use technologies like cookies to store and/or access device information. Consenting to these technologies will allow us to process data such as browsing behavior or unique IDs on this site. Not consenting or withdrawing consent, may adversely affect certain features and functions.
Functional Always active
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.
Manage options Manage services Manage {vendor_count} vendors Read more about these purposes
View preferences
{title} {title} {title}