We’re looking for new Trustees to join our Board!
Are you passionate about making a meaningful impact in the rare disease
community?
Are you interested in supporting the growth of a thriving charity that is
expanding its reach and ambition?
If so, Beacon for Rare Diseases is looking for at least two new Trustees to help shape our future and strengthen our support for individuals and families affected by rare conditions.
As we enter an exciting new phase of development under a new Chair of Trustees, we are looking for Trustees who can bring fresh expertise to our board.
We are particularly interested in recruiting:
A Trustee with lived experience of a rare disease or of patient group leadership, to help ensure our work remains grounded in the real needs of our community and to guide patient-centred decision-making.
A Trustee with financial expertise, to review and advise on our financial reporting, oversight, and strategic financial planning.
A Trustee with fundraising and investment experience, especially someone able to help Beacon broaden its network and build long-term relationships with funders keen to support the charity on a sustainable basis.
Main responsibilities include:
- Attend quarterly board meetings
- Provide strategic advice and guidance to the CEO and staff
- Provide oversight on the charity’s finances and governance
Attend an annual day – long strategy meeting with the board and employees Advocate for Beacon and rare disease patient groups through your work and network
How to apply
Please send your CV and a short cover letter outlining your interest and relevant experience to recruitment@rarebeacon.org.
The deadline for applications is the 4th August 2025.
