Applications are now open for our Patient Group Engagement Committee (PGEC)!
This is an exciting opportunity to help shape Beacon’s work and ensure the rare disease community’s voice remains at its heart.
The committee will unite a diverse group of passionate individuals who bring lived experience, strategic insight, and fresh perspectives to help shape the programmes, projects, and events we deliver.
What we’re looking for:
- A commitment of 15-20 hours per year
- A two-year term
- A passion for rare diseases and a drive to make a meaningful impact in the community
You don’t need to have all the answers. If you bring lived or professional experience and a passion for helping shape work that truly reflects the needs of the rare community, we’d love to hear from you
