Patient Group Pairing

Applications are now closed for the 2021 Patient Group Pairing Scheme, thank you to everyone who took part!


What is The Patient Group Pairing Scheme?


The Student Voice Prize Patient Group Pairing Scheme gives medical students, nurses and biological sciences undergraduate and masters students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience.

The scheme benefits patient groups because it allows groups to share their story and experiences with a doctor, nurse or scientist of tomorrow who may never have considered working with rare disease before.

The scheme benefits students because it introduces them to rare disease early on in their career and helps them to understand the patient experience. They will learn a first-hand account of what it’s like to live with a rare disease in the hopes that they walk away with a new perspective on rare disease care, policy, research and treatment.


Can Partnering with a Patient Group Help My Essay?

Meet Maisha Umama

Maisha entered The Student Voice Prize 2018 competition and was paired with Fibrous Dysplasia Support Society under the Patient Group Pairing Scheme. Maisha was one of the 2018 Runner-Ups with her essay entitled Four things I learned from an individual with fibrous dysplasia.

Here is an excerpt from her essay!

“…rare diseases collectively affect 1 in 17 people meaning that as future clinicians we need to consider how we can provide high quality care to patients with diseases that may be unfamiliar to us. Fibrous dysplasia (FD) is one of those conditions. With an estimated prevalence of 1 in 15000-30000 individuals , it is unsurprising that I had never come across it. Even after researching it I don’t believe I understood how debilitating it can be until I talked to H, an individual with FD, about her experience. It was saddening to hear how FD has severely disrupted her life and disheartening (or at times shocking) to hear about her experiences with healthcare. The chances of me or anyone else coming across a patient with FD may be low but there are many lessons in H’s story that, although seemingly obvious, are important for all good clinicians to remember.”

Check out the patient groups and organisations we paired with students for The 2020 Student Voice Prize!

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