Support the Rare Insights Study
We are still actively seeking grant and sponsorship funding for the Rare Insights Study
We need additional funding to deliver this study, including a public report launch and dissemination event in early 2027 to tie in with Rare Disease Day.
While we have secured funding to get this study up and running, we need further support to deliver the Rare Insights Study to its full potential.
Patient voices are not just anecdotes. They’re the lived evidence that can shape research, improve care, and drive policy change.
Do you want to help strengthen patient groups’ capacity, ensure long-term benefit for thousands of patients and families, and contribute to a more sustainable, connected, and empowered UK rare disease ecosystem?
Get in touch with Mary Rose and Blayne to discuss supporting the Rare Insights project as a proud partner!
Join our network of funders
Beacon’s work is only possible thanks to our wonderful funders and their generous contributions.
Our sponsors and supporters have provided financial support for this study. This study has been organised by Beacon and neither our sponsors nor supporters have determined the content or organisation. All funds received by pharmaceutical companies have been used in accordance with the ABPI code.
Thank you to our pro bono partner
