Meet Niamh, our new Communications Officer!

Jul 26, 2023

We’re so excited to introduce Niamh our new Communications Officer, who joined the Beacon team in June alongside Sophie, our new Projects Officer.  

Get to know one of the newest members of our team and email her at niamh@rarebeacon.org to say hello.

Welcome to the rare family, Niamh!

What were you doing before you joined Beacon?

At the end of last year, I completed a digital marketing apprenticeship at Brampton Park Golf Club. Working in my role as a digital marketing assistant, my focus within was on website development, SEO, social media content creation and management.

I learnt so many useful skills during the apprenticeship, which I intend on bringing to my next role as communications officer here at Beacon!

After finishing my apprenticeship I decided to take a bit of a break to go travelling around Europe with my boyfriend. During this time we visited Norway, Denmark, Germany, Czechia and Luxembourg. It was such an exciting time and a great opportunity to explore many new places! 

Niamh pictured in Norway with her boyfriend.

Why did you choose to join the Beacon team?

Picture of Niamh in London with her best friend.

I was given an insight into the charity sector from doing work experience previously at BBC Children in Need. My placement was in the Corporate Partners & Marketing Team, this gave me an introduction to the important work charities do, and how communications specifically play a key role in making a huge difference to people’s lives.  

As rare diseases affect between 263 million to 446 million people worldwide, the work that Beacon does in supporting the rare community with offering patient support groups, guidance through research, and ensuring no one faces their rare disease journey alone is vital.

I am excited to be a part of the brilliant work that Beacon does!

What do you want to achieve most at Beacon?

Firstly, I would like to learn more about rare diseases as I am completely new to the rare disease space!

By gaining an understanding and increasing my knowledge I aim to raise awareness on social media, through our blogs, and other digital platforms to support the rare disease community in giving them a voice.

Growing the community and our visibility from a digital perspective is very important to me in order to maximise support for those who need it most. 

Niamh in Cornwall with her sister and boyfriend

What are your hobbies outside of work?

Niamh is with Harry Styles at BBC Radio 2.

I love travelling abroad and visiting new places! I also enjoy listening to live music and going to concerts and theatre shows with my friends and family. My favourite concert I’ve been to is definitely Coldplay!

I enjoy listening to Harry Styles, and I was even lucky enough to meet him back in February 2020 as he was performing on BBC Radio 2!

 

What’s your favourite book/film/TV show and why?

I have recently read ‘Verity’ by Colleen Hoover which I very much enjoyed and couldn’t put down.

I love musicals so my favourite film would have to be either Hairspray or Mamma Mia!

My favourite TV show is ‘Call the Midwife’, I used to watch it every Sunday with my Mum and sister, and I still love re-watching all of the old episodes!

And that’s a wrap!

We hope you enjoyed getting to know a little more about one of our newest Beaconites, Niamh.

Remember to email her to say hello and join us in welcoming Niamh to the rare family!

Niamh pictured in Cornwall with her family.

Read more blogs