A powerful story can open doors…
to funding, partnerships and influence!
We’re delighted to invite rare disease patient group leaders to join us in London for a masterclass on storytelling.
You will learn how to create clear, impactful narratives that support your goals and resonate with decision-makers.
Rare disease patient groups are built on powerful stories, but knowing how to tell them well is what makes them effective.
Why attend this masterclass
Knowing how to tell your story well can make a huge difference.
It could:
- Be the difference between a grant application that blends in and one that stands out
- Attract partners, policymakers, or researchers to your mission
- Underpin a successful social media campaign or awareness day
- Form a core part of your impact report
This masterclass will cover:
- The theory of storytelling, why it’s so powerful and how it can influence decisions
- How to tailor your narrative for different audiences and goals
- How to put yourself in the shoes of the people whose minds you want to change, and influence them!
You’ll come away from the day with your own story-based action plan which you can use straight away!
Get your ticket here!
Meet the trainer!
Dave is a qualified marketeer and agency leader, with a deep interest in stories. He’s completed hundreds of medical communications projects and training courses, across many therapy areas, with a focus on rare disease.
He’s also written and self-published two books in his own Rare Disease Club series. He’s passionate about helping others build storytelling skills and influence meaningful change.
Dave Taylor-Langdale
Managing Director
Word Monster Agency
Frequently asked questions
Can I bring a carer with me?
Do you cover travel expenses?
Beacon will reimburse travel expenses for rare disease patients, carers, patient groups and charities, up to the total value of £100 per person. If your travel is likely to exceed this amount, please contact projects@rarebeacon.org ahead of the event so we can discuss whether further reimbursement will be possible.
All expenses, other than mileage, must be accompanied by valid receipts.
For further information on our expenses policy, please click here.
Where is the workshop?
20 Cavendish Square, London W1G 0RN
Closest underground stations:
- Oxford Circus Station – 3 minute walk (Central Line, Bakerloo Line, Victoria Line)
- Bond Street Station – 3 minute walk (Elizabeth Line, Jubilee Line, Central Line)
- Great Portland Street Station – 13 minute walk (Circle Line, Hammersmith & City Line, Metropolitan Line)
Is the venue accessible?
The venue has step-free access via a lift and/or ramp and accessible toilets onsite.
If you have any accessibility requirements, please note these on your registration form so we can ensure that your needs are met.
To discuss any additional accessibility measures we can provide, please get in touch with our team at projects@rarebeacon.org.
Will lunch be provided?
Lunch and refreshments will be provided throughout the day.
If you have dietary requirements, please let us know in the registration form.
Do I have to pay a deposit?
Yes. Registering for this in-person masterclass will require paying a refundable deposit of £30 upon registration. This deposit will be kept safe in Eventbrite until after the training has been completed.
Following the event, if you have attended and signed in, you will get your full deposit back.
We understand that circumstances can change, especially in the rare disease community. Should you register for the event and realise you can no longer attend, please let us know as soon as possible.
We will endeavour to refund your deposit in full provided reasonable notice is given. Reasonable notice for this event is no later than 7 working days before.
Find out more about our deposit scheme here. If you have any questions, please contact projects@rarebeacon.org.
