The Rarely Heard Podcast
A rare disease podcast, sharing stories that matter.
Rarely Heard is a rare disease podcast series brought to you by Beacon for Rare Diseases.
The podcast exists to share the stories, experiences, knowledge, insights, and voices of the rare disease community.
Our guest speakers come from a wide range of backgrounds across the space – including the pharmaceutical industry, patient advocacy, charity leadership, healthcare, and more.
About Beacon
Beacon is a UK charity that is building the rare disease community to drive research and develop treatments.
We are working to unite the rare disease community and we envision a future where no one walks their rare journey alone.
With thanks to our sponsors
And pro bono supporter
