Alexion, AstraZeneca Rare Disease testimonial
“We believe that Beacon, as an umbrella organization, helps bring the rare disease community together…”
Ataxia and Me testimonial
“It has been fantastic to be in this rare disease family knowing you are not alone in this rare disease community.”
Metabolic Support UK testimonial
“As we elevate our individual support, empowerment, advocacy, and insight offers, we hope to partner with Beacon on future campaigns…”
Castleman Disease Collaborative Network testimonial
“Patient groups like Beacon provide critical information and resources to help the rare disease community get closer to treatments for devastating illnesses.”
MdDS Information and Help testimonial
“Beacon, was my metaphorical lighthouse in a stormy sea when I started advocating for people with Mal de Debarquement Syndrome in the UK”
Pitt Hopkins UK testimonial
“There has been advice about how to become a charity, how to fundraise, how to work with researchers. They think of everything!”