• Building rare resilience

    Online via Zoom

    Join this workshop hosted by mental health experts Rareminds to learn practical tools on boundary setting, managing expectations and avoiding burnout.

  • Decoding Diagnostics: Part one and Part two

    Decoding diagnostics
    Online via Zoom

    Join us through a series of webinars and discussion sessions, where we'll explore the fundamental principles of genetic testing, delve into the methods and applications available, and provide practical insights on accessing, interpreting and supporting genetic diagnostic results.

  • Running peer support programmes

    Online via Zoom

    In this 90-minute online event, we will be discussing different types of Peer Support Programmes.

  • Introduction to charity finances

    Online via Zoom

    Join us online to explore the essentials of managing your rare disease charity’s finances, from legal compliance to effective financial planning and monitoring.

  • Empowering patient groups in rare disease research funding

    Online via Zoom

    Join us on our upcoming webinar series on accessing funding for rare disease research. These sessions are particularly useful for patient groups already working with an academic or research lead!

  • Welcome to the REMEDi4ALL Digital Academy

    Online via Zoom

    Are you ready to embark on an exciting digital learning journey with us? Join us on Wed Jan 29 2025 at 11:30PM GMT for our online event where we will introduce you to our innovative academy.