Building rare resilience
Join this workshop hosted by mental health experts Rareminds to learn practical tools on boundary setting, managing expectations and avoiding burnout.
Join this workshop hosted by mental health experts Rareminds to learn practical tools on boundary setting, managing expectations and avoiding burnout.
Join this event to celebrate another successful Student Voice Prize competition!
Join us through a series of webinars and discussion sessions, where we'll explore the fundamental principles of genetic testing, delve into the methods and applications available, and provide practical insights on accessing, interpreting and supporting genetic diagnostic results.
Join our RareChat to explore cost-effective strategies for organising inclusive and accessible events
Join this webinar to discover diverse funding sources and learn how to lay the groundwork for strategic and successful fundraising.
Join this webinar to learn the essentials of hiring for your charity: from legal setup to strategic skills audits, ensure your organisation is ready to recruit for the right role.
Join this masterclass for a step-by-step guide on how to recruit the best people to your rare disease patient group!
In this 90-minute online event, we will be discussing different types of Peer Support Programmes.
Join us online to explore the essentials of managing your rare disease charity’s finances, from legal compliance to effective financial planning and monitoring.
In this 90-minute online RareChat, we will be discussing international outreach strategies and challenges.
Join us on our upcoming webinar series on accessing funding for rare disease research. These sessions are particularly useful for patient groups already working with an academic or research lead!
Are you ready to embark on an exciting digital learning journey with us? Join us on Wed Jan 29 2025 at 11:30PM GMT for our online event where we will introduce you to our innovative academy.