News
We publish our latest news and updates in one place to make staying in the know simple. Follow our latest event announcements, project updates, open recruitment calls and features in the media here.
If you’d like to be amongst the first to know about our event announcements and project updates, subscribe to our newsletter. The Beacon Bulletin gives you first access to newly released tickets and keeps you connected with our charity news. Subscribe today!
Please note: We were previously known as Findacure before rebranding as Beacon in 2022.
Could you be our next Senior Patient and Scientific Engagement Officer?
We're looking for a Senior Patient and Scientific Engagement Officer to join the Beacon team
We’re hiring! Join our team
Help shape the next chapter of Beacon: for rare diseases as our new Admin and Operations Officer
Beacon is seeking new Trustees!
We're looking for new Trustees to join our Board!Are you passionate about making a meaningful impact in the rare diseasecommunity? Are you...
LifeArc and Genetic Alliance UK launch new report
Today, the not-for-profit medical research organisation LifeArc launched a new report with the aim of driving meaningful change for people living...
Join our Patient Group Engagement Committee!
Applications are now open for our Patient Group Engagement Committee (PGEC)! This is an exciting opportunity to help shape Beacon’s work and ensure...
It’s Small Charity Week!
To celebrate Small Charity Week, we’ve handpicked a selection of free training opportunities designed specifically for patient groups. Whether...
Beacon’s role in The LifeArc Translational Centres for Rare Disease
At the end of last year, the LifeArc Translational Centres for Rare Disease were launched to bring together the UK’s rare disease ecosystem and in...
Apply for the Jeans for Genes grant programme!
The Jeans for Genes Grant Programme is now open for applications! Organised by the CGD Society, the annual Jeans for Genes campaign raises vital...
The Student Voice Prize winning essays have been published!
The winners and runners-up essays of the Student Voice Prize 2024 are now available to read! The Student Voice Prize is an annual, international...
Announcing the Student Voice Prize winners and runners-up for 2024!
We're excited to be announcing the winners and runners-up of the Student Voice Prize 2024! The Student Voice Prize is an annual, international essay...
Trustee announcement
Trustee announcementAfter twelve wonderful years, our Chair, Nick Sireau, has stepped down from Beacon's Trustee Board. Nick co-founded the charity...
Volunteer at Beacon!
Beacon for Rare Diseases is looking for a Trusts and Foundations Volunteer, to assist our Fundraising Team and help us secure vital funding that...
We’re hiring a new Senior Scientific Projects Officer!
Beacon for Rare Diseases is seeking a Senior Scientific Projects Officer to join our established team and support us through the next stage in our...
Announcing The Student Voice Prize 2023 winning essays!
Earlier this month the winner and runners-up for the biggest Student Voice Prize to date were announced. We're excited to share that the winning...
We’re hiring a new Events and Projects Officer!
Beacon is seeking an entry-level Events and Projects Officer to join our established Projects Team and support us through the next stage in our...
Could you be our next Senior Patient and Scientific Engagement Officer?
We're looking for a Senior Patient and Scientific Engagement Officer to join the Beacon team![ba_advanced_divider active_element="image"...
We’re hiring! Join our team
Help shape the next chapter of Beacon: for rare diseases as our new Admin and Operations Officer![ba_advanced_divider active_element="image"...
Beacon is seeking new Trustees!
We're looking for new Trustees to join our Board!Are you passionate about making a meaningful impact in the rare diseasecommunity? Are you...
LifeArc and Genetic Alliance UK launch new report
Today, the not-for-profit medical research organisation LifeArc launched a new report with the aim of driving meaningful change for people living...
Join our Patient Group Engagement Committee!
Applications are now open for our Patient Group Engagement Committee (PGEC)! This is an exciting opportunity to help shape Beacon’s work and ensure...
It’s Small Charity Week!
To celebrate Small Charity Week, we’ve handpicked a selection of free training opportunities designed specifically for patient groups. Whether...
Beacon’s role in The LifeArc Translational Centres for Rare Disease
At the end of last year, the LifeArc Translational Centres for Rare Disease were launched to bring together the UK’s rare disease ecosystem and in...
Apply for the Jeans for Genes grant programme!
The Jeans for Genes Grant Programme is now open for applications! Organised by the CGD Society, the annual Jeans for Genes campaign raises vital...
The Student Voice Prize winning essays have been published!
The winners and runners-up essays of the Student Voice Prize 2024 are now available to read! The Student Voice Prize is an annual, international...
Announcing the Student Voice Prize winners and runners-up for 2024!
We're excited to be announcing the winners and runners-up of the Student Voice Prize 2024! The Student Voice Prize is an annual, international essay...
Trustee announcement
Trustee announcementAfter twelve wonderful years, our Chair, Nick Sireau, has stepped down from Beacon's Trustee Board. Nick co-founded the charity...
Volunteer at Beacon!
Beacon for Rare Diseases is looking for a Trusts and Foundations Volunteer, to assist our Fundraising Team and help us secure vital funding that...
We’re hiring a new Senior Scientific Projects Officer!
Beacon for Rare Diseases is seeking a Senior Scientific Projects Officer to join our established team and support us through the next stage in our...
Announcing The Student Voice Prize 2023 winning essays!
Earlier this month the winner and runners-up for the biggest Student Voice Prize to date were announced. We're excited to share that the winning...
We’re hiring a new Events and Projects Officer!
Beacon is seeking an entry-level Events and Projects Officer to join our established Projects Team and support us through the next stage in our...